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Bertolotti's Syndrome: Looking for a specialist
Spine Health | Last Active: Jan 18 9:10pm | Replies (48)Comment receiving replies
I have been experiencing back pain since 16 or 17 years old. I am now 25.
A chiropractor stated one leg was longer than the other and tried treatment. With no luck at the chiropractor, I moved on to the UVA Spinal Center. There, I had an MRI which showed a herniated disc at L4 and L5. I went to physical therapy which was unsuccessful in relieving any pain. I then switched my care to a different Spinal Center where they discovered I had a "pseudo joint" where my left transverse process on L5 was fused with my sacrum. However, they only treated the disc herniation with steroid injections (3 to be exact). I found myself at Andrew's Institute in Pensacola where I had more imaging, one Bertolotti's steroid injection, and 4 more steroid injections for the disc herniation. NONE of the injections were pain relieving so I was sent back to physical therapy through Andrew's Institute for 6 weeks. After more unsuccessful treatment the doctor at Andrew's decided that he could do no more and did not want to perform surgery. Here I am. Does anyone know if there is a doctor at the Mayo Clinic in Jacksonville or anyone that has had experience with Bertolotti's Syndrome?
Replies to "I have been experiencing back pain since 16 or 17 years old. I am now 25...."
My case seems very similar! did you ever get any help?
Just stumbled upon this and wanted to ask who the doctor was at Andrews that you saw? I was given a name of a doctor there named Dr. Tan and was hoping he would have some experience with BS. I am currently seeing an neurosurgeon who dismisses any mention of BS despite my MRI and CT scans and report, and symptoms pointing to all of the obvious signs of it (not to mention all of the extensive, legit research I have done).
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Hello @nikko092, welcome to Connect. You may notice that I moved your discussion and combined it with an already existing discussion about finding specialists in bertolotti's syndrome. If you are interested in contacting Mayo Clinic Jacksonville to learn more about their providers and if there is a specialist you can contact them by 904-595-6279 8 a.m. to 5 p.m. Eastern time, Monday through Friday or using the following link, mayocl.in/1mtmR63. The operators on the appointment lines will be best equipped to answer your questions.
@nikko092, you mentioned that your current provider did not want to perform surgery, if you are comfortable sharing, did she or he give a reason for this and what options were you hoping for?