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Just diagnosed with pancreatic NET stage 1

Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)

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@tomrennie

Stage 4 doesn't have to be terminal. You are spreading incorrect information.

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Replies to "Stage 4 doesn't have to be terminal. You are spreading incorrect information."

I have been dealing with NET’s for 18 months. I have had a half a dozen doctors tell me it is terminal. I’ve been told i was going to die last August and last November. NET can be managed but not cured from what I’ve been told.
Perhaps your vast knowledge of NET’s could be forwarded to us all so we can pass it along to our medical teams.