Any experience with rectocele? No one EVER talks about this!

I am unable to have a bowel movement on my own, have a rectocele, had stool in my vagina, and an inability to digest food. What other type of specialist should I see, what other tests can be done, and any ideas on other possible medical causes for my condition besides SIBO and chronic constipation? How can I better advocate for myself when no one has been able to help me regarding this condition? Any Diet or treatment suggestions, and how to manage this pain would be appreciated.

Here is my story:

Diagnosed with sibo & chronic constipation 3 years ago
Suffering from:
• Abdominal pain
• Nausea
• Vomiting
• Exhaustion and fatigue
• Chest pain
• Shortness of breath
• Rib pain
• Cold all the time
• Foul-smelling gas
• Muscle spasms
• 30 lb. weight loss
• No appetite
• Bloating
• Rectocele
• Stool in the vagina
• Fatty stools
• Malnutrition
• Inability to have a bm on my own
Present day:
• No regular bm since Jan 19 after MR enterography & drinking barium
• Diagnosed with fecal impaction
• Have tried:
• Magnesium citrate
• Miriax 3x daily
• 2 colon prep
• enema
• went to Er with no help
• As no one was able to help me decided to do colon hydrotherapy on my own
• did 8 colonics in 3 weeks, felt better
• Went off all supplements and motility meds for 2 weeks in preparation for another breath test
• no bm in 5 days after the last colonic
• Had one small bm on Sunday covered in fat and floating
• I restarted all my constipation meds that night.
• The following morning had diarrhea 4 x which had a layer of grease floating and bubbles on top and felt better
• Have not had a bm since even with meds.
• Can’t eat, sick stomach, can’t do anything, hopeless, no one can help me

Have had:
• 29 tests and procedures
• 3 gastroenterologists
• 2 functional medicine doctors
• 2 nutritionists
• 5 diets
• 5 physical therapists
• Acupuncturist
• Colon hydrotherapy
• Meditation
• Colon massage

Prescriptions tried:
• Linzess
• Motegrity
• Amitiza
• Sutab colonoscopy prep (2 X)
• 8 rounds of antibiotics (xifaxin 3 rounds, doxycycline, ciproflaxin, neomycin, Bactrim, tried augmentin but too strong)

every supplement imaginable including herbal antibiotics

• Mirilax
• Stool softener
• Magnesium citrate
• Digestive enzymes
• Probiotics
• Prebiotics
• Cod liver oil
• electrolytes

I've researched other probable causes and found that issues regarding your pancreas, liver and other organs involved in digestion could be compromised.

Please help with any path to wellness that I haven't tried for my condition and how to better advocate for myself.

There definitely could be an issue with your pancreas. You mood two tests: a stool fat test and a fecal elastase. What you are describing sounds like E.P.I. (Exocrine Pancreatic Insufficiency). At least one of your gastroenterologists should have ordered these.

I am unable to have a bowel movement on my own, have a rectocele, had stool in my vagina, and an inability to digest food. What other type of specialist should I see, what other tests can be done, and any ideas on other possible medical causes for my condition besides SIBO and chronic constipation? How can I better advocate for myself when no one has been able to help me regarding this condition? Any Diet or treatment suggestions, and how to manage this pain would be appreciated.

Here is my story:

Diagnosed with sibo & chronic constipation 3 years ago
Suffering from:
• Abdominal pain
• Nausea
• Vomiting
• Exhaustion and fatigue
• Chest pain
• Shortness of breath
• Rib pain
• Cold all the time
• Foul-smelling gas
• Muscle spasms
• 30 lb. weight loss
• No appetite
• Bloating
• Rectocele
• Stool in the vagina
• Fatty stools
• Malnutrition
• Inability to have a bm on my own
Present day:
• No regular bm since Jan 19 after MR enterography & drinking barium
• Diagnosed with fecal impaction
• Have tried:
• Magnesium citrate
• Miriax 3x daily
• 2 colon prep
• enema
• went to Er with no help
• As no one was able to help me decided to do colon hydrotherapy on my own
• did 8 colonics in 3 weeks, felt better
• Went off all supplements and motility meds for 2 weeks in preparation for another breath test
• no bm in 5 days after the last colonic
• Had one small bm on Sunday covered in fat and floating
• I restarted all my constipation meds that night.
• The following morning had diarrhea 4 x which had a layer of grease floating and bubbles on top and felt better
• Have not had a bm since even with meds.
• Can’t eat, sick stomach, can’t do anything, hopeless, no one can help me

Have had:
• 29 tests and procedures
• 3 gastroenterologists
• 2 functional medicine doctors
• 2 nutritionists
• 5 diets
• 5 physical therapists
• Acupuncturist
• Colon hydrotherapy
• Meditation
• Colon massage

Prescriptions tried:
• Linzess
• Motegrity
• Amitiza
• Sutab colonoscopy prep (2 X)
• 8 rounds of antibiotics (xifaxin 3 rounds, doxycycline, ciproflaxin, neomycin, Bactrim, tried augmentin but too strong)

every supplement imaginable including herbal antibiotics

• Mirilax
• Stool softener
• Magnesium citrate
• Digestive enzymes
• Probiotics
• Prebiotics
• Cod liver oil
• electrolytes

I've researched other probable causes and found that issues regarding your pancreas, liver and other organs involved in digestion could be compromised.

Please help with any path to wellness that I haven't tried for my condition and how to better advocate for myself.

I am unable to have a bowel movement on my own, have a rectocele, had stool in my vagina, and an inability to digest food. What other type of specialist should I see, what other tests can be done, and any ideas on other possible medical causes for my condition besides SIBO and chronic constipation? How can I better advocate for myself when no one has been able to help me regarding this condition? Any Diet or treatment suggestions, and how to manage this pain would be appreciated.

Here is my story:

Diagnosed with sibo & chronic constipation 3 years ago
Suffering from:
• Abdominal pain
• Nausea
• Vomiting
• Exhaustion and fatigue
• Chest pain
• Shortness of breath
• Rib pain
• Cold all the time
• Foul-smelling gas
• Muscle spasms
• 30 lb. weight loss
• No appetite
• Bloating
• Rectocele
• Stool in the vagina
• Fatty stools
• Malnutrition
• Inability to have a bm on my own
Present day:
• No regular bm since Jan 19 after MR enterography & drinking barium
• Diagnosed with fecal impaction
• Have tried:
• Magnesium citrate
• Miriax 3x daily
• 2 colon prep
• enema
• went to Er with no help
• As no one was able to help me decided to do colon hydrotherapy on my own
• did 8 colonics in 3 weeks, felt better
• Went off all supplements and motility meds for 2 weeks in preparation for another breath test
• no bm in 5 days after the last colonic
• Had one small bm on Sunday covered in fat and floating
• I restarted all my constipation meds that night.
• The following morning had diarrhea 4 x which had a layer of grease floating and bubbles on top and felt better
• Have not had a bm since even with meds.
• Can’t eat, sick stomach, can’t do anything, hopeless, no one can help me

Have had:
• 29 tests and procedures
• 3 gastroenterologists
• 2 functional medicine doctors
• 2 nutritionists
• 5 diets
• 5 physical therapists
• Acupuncturist
• Colon hydrotherapy
• Meditation
• Colon massage

Prescriptions tried:
• Linzess
• Motegrity
• Amitiza
• Sutab colonoscopy prep (2 X)
• 8 rounds of antibiotics (xifaxin 3 rounds, doxycycline, ciproflaxin, neomycin, Bactrim, tried augmentin but too strong)

every supplement imaginable including herbal antibiotics

• Mirilax
• Stool softener
• Magnesium citrate
• Digestive enzymes
• Probiotics
• Prebiotics
• Cod liver oil
• electrolytes

I've researched other probable causes and found that issues regarding your pancreas, liver and other organs involved in digestion could be compromised.

Please help with any path to wellness that I haven't tried for my condition and how to better advocate for myself.

I am unable to have a bowel movement on my own, have a rectocele, had stool in my vagina, and an inability to digest food. What other type of specialist should I see, what other tests can be done, and any ideas on other possible medical causes for my condition besides SIBO and chronic constipation? How can I better advocate for myself when no one has been able to help me regarding this condition? Any Diet or treatment suggestions, and how to manage this pain would be appreciated.

Here is my story:

Diagnosed with sibo & chronic constipation 3 years ago
Suffering from:
• Abdominal pain
• Nausea
• Vomiting
• Exhaustion and fatigue
• Chest pain
• Shortness of breath
• Rib pain
• Cold all the time
• Foul-smelling gas
• Muscle spasms
• 30 lb. weight loss
• No appetite
• Bloating
• Rectocele
• Stool in the vagina
• Fatty stools
• Malnutrition
• Inability to have a bm on my own
Present day:
• No regular bm since Jan 19 after MR enterography & drinking barium
• Diagnosed with fecal impaction
• Have tried:
• Magnesium citrate
• Miriax 3x daily
• 2 colon prep
• enema
• went to Er with no help
• As no one was able to help me decided to do colon hydrotherapy on my own
• did 8 colonics in 3 weeks, felt better
• Went off all supplements and motility meds for 2 weeks in preparation for another breath test
• no bm in 5 days after the last colonic
• Had one small bm on Sunday covered in fat and floating
• I restarted all my constipation meds that night.
• The following morning had diarrhea 4 x which had a layer of grease floating and bubbles on top and felt better
• Have not had a bm since even with meds.
• Can’t eat, sick stomach, can’t do anything, hopeless, no one can help me

Have had:
• 29 tests and procedures
• 3 gastroenterologists
• 2 functional medicine doctors
• 2 nutritionists
• 5 diets
• 5 physical therapists
• Acupuncturist
• Colon hydrotherapy
• Meditation
• Colon massage

Prescriptions tried:
• Linzess
• Motegrity
• Amitiza
• Sutab colonoscopy prep (2 X)
• 8 rounds of antibiotics (xifaxin 3 rounds, doxycycline, ciproflaxin, neomycin, Bactrim, tried augmentin but too strong)

every supplement imaginable including herbal antibiotics

• Mirilax
• Stool softener
• Magnesium citrate
• Digestive enzymes
• Probiotics
• Prebiotics
• Cod liver oil
• electrolytes

I've researched other probable causes and found that issues regarding your pancreas, liver and other organs involved in digestion could be compromised.

Please help with any path to wellness that I haven't tried for my condition and how to better advocate for myself.

Have you had a pancreatic enzyme insufficiency PEI done?

I have not yet, Susan. I did just get a MRCP which is an MRI of my pancreas and other organs. I haven't heard back from the doctor yet however they did find some issues. I also had two x-rays and I'm having a Stool analysis done. I'll keep you updated. Thanks for checking in on me. I really appreciate it.

Please let us know the results of your fecal elastase test. That is what doctors use to diagnose EPI, which I suspect you have.