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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

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@gingerw

@agatha679 Like you, I had many tests done for the neuropathy in my left leg/foot. They were looking at spinal issues, and all. In the end, it is caused by the nerve involvement of the underlying MGUS that morphed into active myeloma in short order. [I tell people that being an over-achiever, I just couldn't let MGUS lay dormant like it normally does. I was an active myeloma patient within 18 months of my diagnosis of MGUS.] Yes, the neuropathy continues, and like you, the outside of my left foot is especially affected. I use a cane to help ensure I don't lose my balance. I tried Gabapentin for a while, but the therapeutic doses are more than my kidney issues can handle, so I quit it It is more of a "well, it is what it is" situation for me at this point.
Ginger

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Bless you Ginger. It sounds like you are dealing with a lot.
Thank you for sharing, I pray your treatment is working.