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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)
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@kellysc

Hello, new world.
I am 47 and diagnosed yesterday with Polycythemia Vera. Headed to Mayo in April. I have not felt well for a couple of years. Looking back at my lab work, all the symptoms and lab levels were right there, but no one caught it. Two trips to the ER in a week and a half, lab work, and finally my endocrinologist put the pieces together. I am glad to have a diagnosis, but I am stunned to have this at a relatively young age. Any input much appreciated.
Kelly

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Replies to "Hello, new world. I am 47 and diagnosed yesterday with Polycythemia Vera. Headed to Mayo in..."
buckaroobanzai | @buckaroobanzai | Apr 5, 2023

Kelly, my story is similar in that I also felt poorly for a couple of years before they began to treat me. And, like you, the signs, symptoms, and lab tests were all right there but no one caught it. Strangely enough, I - not my PCP - was the one who realized that I needed treatment. I did some research and eventually figured it out. I asked to see a specialist. The specialist agreed with my self-diagnosis and began treatment.

I feel much better now.

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