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Benign or Malignant IPMN? What to do next?

Pancreatic Cancer | Last Active: Apr 8, 2023 | Replies (79)

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@ken240

I had an IPMN in the tail of the pancreas found in summer of 2021. It was 2 cm. The EUS determined it was benign. So it surveilled again in June 2022. It was 2.1 cm and the main duct was dilated. I had a distal pancreatectomy at the time, and there was cancer found in the resected tissue. But no spread. I was stage 1b. I had 12 rounds of Folferinox and CT scan showed a spot on my liver not previously noticed. Looks like cancer again. Biopsy in a couple of days. CA 9-19 spiked to 650. Doctor had hoped that Folferinox would cure, but now the hope is to control. Like you say, everyone is different and I don't know if any of my experience is helpful, but this form of cancer seems particularly sneaky and hard to stop, even in a case like mine where it started out optimistic. Wish you the best.

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Replies to "I had an IPMN in the tail of the pancreas found in summer of 2021. It..."

Oh sorry to hear you had developed cancer. Of course my big concern. I go back and forth constantly. I have these past 9 years of no progression but I know this is not the be all and end all. I really appreciate you sharing your experience. All the best to you going forward and stay in touch as you feel up to it. Bev