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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 20 hours ago | Replies (399)
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@cindy1209

Thank you for your positive message to Sammy. My name is Cindy, and I was diagnosed with PV in 2021 after bloodwork for a regular PCP appointment. I was diagnosed with metastatic breast cancer in 2019 (second battle with breast cancer first diagnosed in 1999 at the age of 39). I had surgery, high dose chemo and radiation therapy. I kept positive and did really well. So, when I was diagnosed with PV, I was completely devasted. My treatments thus far have been therapeutic phlebotomy and aspirin. I first had them weekly, monthly, every 3 months and now I am at every four months. My hematologist is at MGH Boston and feel like I am in very good hands. This disease is a very lonely one, it is so rare, and I try my best to stay positive and not to worry so much. I have wonderful family and in December became a grandmother. Thank you again for your positive message, you made my day. Best wishes.

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sammy123 | @sammy123 | Apr 5, 2023

Hi Cindy1209- So very glad to hear from you- I shall soon be 75!! Where have the years gone? I also had metastatic breast cancer in 2018. I only hand to have radiation for 6 weeks. (also had the whole top of breast removed) I have been very faithful at seeing my DR yearly for health exam- He currently retired- (darn) I have a new Dr- not quite sure about him- Only seen him 3 times- He is the person that realized I had a problem- My red & white blood cell are both elevated - I will be seeing the hematologist 4/14- It will be the same Dr that did my breast cancer treatment. I was very please with the outcome- so I have lots of faith I'm in the right hands. We have been under a lot of stress the last 2 yrs Our son was in a car accident and now is a quadriplegic- We spend all day & nights taking care of him. we do have a helper every morning- showers, dressing, exercises, plus--- I am not complaining, just tired- I hope my energy can build up again- Not use to asking for help- Do not know what will happen to him if I don't survive this-
Getting ahead of our needs- One day at a time- will cross that bridge when it comes. I am just so pleased to have people to correspond with.
/Congratulations for the new baby- How wonderful. We have 4 children- 10 grandchildren, 9 great grandchildren- Busy family--- Love them all.
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