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Hello everyone! Happy to see all stories and comments. I have not been on the site in awhile. Managing my symptoms pretty well considering. I have a bit of anxiety and my confidence is suffering. I find myself telling people that I have PD because when I speak I have a bit of a slur. My PT-Speech tells me she doesn't detect it--not that obvious. But, I feel so slow and not quick to react in conversation and to movement in general. Kind of confused and in a fog. I fight to stay motivated and excited. Its the holidays and I'm kind of wishing they would hurry up and go away. I can't do what I used to be able to do for myself or my family and it is frustrating. I haven't really adjusted to that. All I can do is get back and forth to work, come home and go to bed. By the weekend I'm so exhausted. I have a grandchild and another on the way and have no energy for her.
Replies to "Hello everyone! Happy to see all stories and comments. I have not been on the site..."
Hi @denie57 Yes, the holidays do bring about changes for us with PD. We can't expect our bodies to be able to handle the same "load of busyness" that they use to. So give yourself a break and decide on what is really important to you. As we begin to prioritize based on realistic expectations, we feel less frustrated (and less exhausted). I understand about your speech problems and that is common. I notice it especially when I'm tired, so I keep my conversations short and meaningful. I realize that not everything on my mind, needs to be said! Practice reading out loud slowly and pausing, that has helped me to talk slowly and pause more.
Hi @denie57, Teresa started a new discussion a while back dedicated to sharing ideas about speech and swallowing issues. When you have a moment, would you mind adding what has helped you here:
- Parkinson's and Speech/Swallowing Problems http://mayocl.in/2goA14D
I've been tested twice and both came out the same. What seems to work for me is a large glass of ice water BEFORE I eat my meal. When the water isn't available, I often have the problem of food sticking, excess spit and near throwing up. Take the water and it really helps!
Thanks, @trouble4343, that is a very helpful idea. I have never tried it, but I will in the near future.
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@denies57 - I know this is easier said than done but don't worry about the small stuff like decorating for the holidays, etc. Take that time and instead enjoy time with your grandchild. That is much more important than holiday decorations. I know that the inability to speak like normal can be devastating. My husband is going through this and I strive to make sure I understand him but sometimes it doesn't work. As a wife/caregiver, I am tired scared and feel so neglected by our so called friends but I take one event at a time. I gave up taking one day at a time. We have been on this road for over ten years but he is mine and I will take care of him as long as possible. Give yourself a break and take care of the important things in your life! Good luck and many hugs coming your way.