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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)

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@inevanmac

Don’t be, just trust your specialist. It is manageable with medication.

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Replies to "Don’t be, just trust your specialist. It is manageable with medication."

Agreed! I found out last fall that I have ET and the Jak2 mutation. BMB was negative (for leukemia) but my iron and ferritin are extremely low. No obvious symptoms so far. Both my oncologist and my vascular surgeon nephew tell some people have treated this condition for years with Hydroxyurea with no or only minor side effects. So far no negative reaction to the medication for me.