Thank you! Unfortunately my NET is in my breast and all specialists (UNM, Mayo) agree it should be treated as "ordinary" breast cancer. Sadly, this has poor results, and the World Health Organization says there are no protocols, and asks for research on the topic. The tumor is too fast growing for NET specific drugs. I was offered chemo, but declined due to kidney disease,
numerous co-morbidites, and preference. I've had a lumpectomy, but cancer is possibly still in a lymph node according to post op scan (pathology report notes only one other cancerous node). This may all be ordinary, but I'm 8 months in to diagnostics and a bit of treatment, including AI. I was pessimistic on diagnosis, and am now more so. I won't just walk away from doctors as my husband--a truly wonderful guy--wants me to at least listen to medical advice. Currently debating radiation. Each doc seems to go through a similar cycle: this is very rare and aggressive, this is totally ordinary, you need big gun treatment immediately, you need more treatment, etc. So emotionally & spiritually I've taken my attitude into my own hands, proceeding with common sense but little hope of cure. Instead, relying on family, friends, nature, creativity, travel (while I can), live music, reading, prayer, meditation, gardening, and being helpful when I can to give my life energy and meaning. Regards to you and this wonderful chat board.