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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@roserogers

Hello,
In March 2022 I was diagnosed with Parkinson's Disease by a General Neurologist.
At that time I was advised to see a Movement Specialist and waited 6 months to see a highly recommended specialist at University of Texas.
His diagnosis is Multi System Atropy (MSA), a rare, fatal disease.
If you have any advice or experience with the stages of MSA and what I will be dealing with going forward, I will very much appreciate hearing from you.
Thank you.

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Replies to "Hello, In March 2022 I was diagnosed with Parkinson's Disease by a General Neurologist. At that..."

Welcome @roserogers, I don't have any experience with MSA but there is another discussion you might find helpful:
-- Parkinson's along with Multiple Systems Atrophy (MSA): https://connect.mayoclinic.org/discussion/parkinsons-plus-msa/.

Here is another site that has a lot of information and may help answer some of your questions:
-- Multiple System Atrophy - Types and Symptoms: https://www.multiplesystematrophy.org/about-msa/types-and-symptoms/.

Did the Movement Specialist offer any information or suggestions on what to expect?