← Return to Life after total thyroidectomy after papillary cancer
DiscussionLife after total thyroidectomy after papillary cancer
Thyroid Cancer | Last Active: Feb 3 6:14am | Replies (40)Comment receiving replies
Replies to "@colleenyoung , yes, I have had 3 endos. This is my third. He does not listen..."
Hi,
All of those different types of thyroid medications are very different. If you find a good endocrinologist they'll help you with that. One thing that might be affecting your levels and how you feel is taking Tirosint. That is natural thyroid hormone from pigs. It can work great for some people, but it can have very varying amounts of thyroid in it. For a variety of reasons. That then of course makes your thyroid levels fluctuate, and makes you feel like crap. But it works for some people! Level thyroxine is the manufactured t4, and that works great for other people and is pretty stable. A lot of people need t3 on top of t4, especially if part or all of their thyroid has been removed. That's what I needed. So I take t4, levothyroxine, and a little bit of t3, cytomel.
It can take a long time and a lot of adjusting, but an endocrinologist who understands the differences between these and is willing to try things will be very helpful to you.