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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

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@circawdm

Numbness, burning sometimes in toes, rarely serious pain. I do many things. Worse at night bedtime. If I think it will prevent getting to sleep well, I take 2 Extra Strength Tylenol.

Other things I do that really help:

1. Epsom Salt warm water foot soaks 2x a day. They are full of magnesium which is good for this. I walk slowly. Keeping the circulation up is a MUST. I have a vibration pad I use on my feet daily 1-2x for 15 minutes. I have an EMS/TENS stimulator for my feet (Revitalize on Amazon) I use daily. Foot stretches. Physical therapy 1x a week.

2. Clean, anti-inflammatory diet. NO sugar, no red meat. VERY IMPORTANT! Especially if you are diabetic (which I am not).
3. Supplements and diet: D3, C, Olive oil, broccoli, blueberries, colorful fruits, and veggies. Garlic- fresh or in pills. Tumeric in pills. Omega 3 Fatty Acid capsules 2500 mg/day. **VERY IMPORTANT.**
4. I meditate or do relaxation exercises 1-2 x a day. STRESS causes inflammation to rise!
5. I get 7-8 hours of sleep every night. I do not eat after 8 PM. NO alcohol! Alcohol and sugar really make PN flare for most people. I see my neurologist every 4-5 months to check to make sure things are stable. I have been pretty stable since last July.

That's about it. It means changing your entire way of living and eating for most people, but it has been proven to help from a little to a lot. No medications like Gabapentin, Lyrica, or Cymbalta. They just mask the symptoms and do NOT get to the cause. And regardless of whether you have issues in your feet, hands, arms, legs, or all, inflammation and poor circulation are bound to make them much worse!

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Replies to "Numbness, burning sometimes in toes, rarely serious pain. I do many things. Worse at night bedtime...."

Hi @circawdm, Thanks for sharing some really good suggestions and what has helped with your neuropathy symptoms. I just wanted to let you know about another site that has some great advice on living well with neuropathy if you haven't already seen it.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/.