← Return to Hairy Cell Leukemia
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Blood Cancers & Disorders | Last Active: Apr 10, 2023 | Replies (39)
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Replies to "@c1608, I like how @becsbuddy - from one nurse to another - reminded you how you..."
@c1608 This site has great educational material, listing of centers of excellence for treatment, online support groups and live webinars. https://www.hairycellleukemia.org/about-us
I’ve gotten wonderful small group and individual support from member of this support group: https://m.facebook.com/groups/hairycellleukemiasupport/
The third resource that I would encourage you to explore is NIH. The lead investigator is Dr Kreiman. He is very responsive to inquiries. I send my blood there currently for a study on Covid-19 and HCL. kreitmar@mail.nih.gov
I had a scary couple of months but on the other side of all that and happy to help you if I can.