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Bob (@rllarocca)

Hairy Cell Leukemia

Blood Cancers & Disorders | Last Active: Apr 10 10:13pm | Replies (39)

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@c1608 I am so sorry to hear of your husband’s diagnosis. Cancer is a very difficult time for everyone. But you can do it, and with your help, so can your husband. Right now, you can sit together and talk about how this ( going through treatment , etc) will change things. Your husband may want you to handle some things that he used to do. But, he may want to continue doing as much as he can. He needs to maintain some control.
You can also get a small 3-ring binder and start a journal where you’ll write down everything that’s said and your husband’s daily health.
As one nurse to another, i would recommend that you wear your ‘nurse hat’ when at doctor visits, when sitting in chemo room, etc. You’ll want to keep your eyes wide open, making sure everything goes smoothly. Once you get home, leave your nurse self in the car and become a wife again. Take it 1 day at a time! I was an oncology nurse, so you can ask me any questions.!
There is a Blood Cancers support group and you can probably find answers there.
Just click on the link and it will take you there.
Do you have any ideas of how you want to support him?

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Replies to "@c1608 I am so sorry to hear of your husband’s diagnosis. Cancer is a very difficult..."

Thank you so much for responding. To answer your question, I just want to be his rock and his advocate. We have 4 boys ages 13-23 and we have not told them yet. We have his first appointment tomorrow to discuss his results of his bone marrow biopsy (we received the results online first and haven't spoken to the MD yet). I would like him to do any treatment through OHSU since that was where he was diagnosed with MS. I don't know what to expect and we are both scared right now. I just want him to have the best life he can.