Hello Pink Flamingo,

I understand medical insurance companies are difficult to navigaye among other issues. If you can get to the customer service at your insurance company and explain you have a rare cancer, polycythemia vera and difficulty getting care they will sometimes make exceptions...While your doing this continue care with the doctors you have while you wait...I'm so sorry your having such a struggle to get well..Another thought on this issue is call Sloane, Mayo, John Hopkins, Mass General etc. and ask their access centers if they have PV specialists. If they do then theirs research programs and they're looking for pts. Sometimes these hospitals will speak with your insurance company and help you..I'm glad your getting care while you wade through the insurance maze....