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Essential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Apr 15 2:24pm | Replies (476)Comment receiving replies
I was diagnosed with ET about 2 years ago and since then doing labs every 3 months. My Dr. Told me early on if my platelet count rose to 500 I would need Hydrea. After 2 recent bouts of covid 108 days apart my count went to 551. We will recheck in 30 days to see if they have gone down. I would like to know if anyone else has experienced elevated platelets after covid. I am deeply concerned about possibly going on this medication. So, I would
Appreciate anything you can share about your experience.
Since it is so rare does anyone know of a cancer center that is more knowledgable than others.
I am trying to gain all the knowledge I can about ET.
Thank for any and all information.
Replies to "I was diagnosed with ET about 2 years ago and since then doing labs every 3..."
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Platelets can change daily with what is going on in your body, Should they still be elevated you could possibly ask your hematologist if you could start with low dose Hydroxyurea…some take it just three days a week. You can always increase dose later. If you do start to take it remember to drink minimum 64 ounces of fluid to flush toxins.
Eileen