← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@kelliw

Good morning Jess-I was wondering when you felt you were able to start taking walks again? I have been feeling great so far. When did you experience the leg tingling and nausea? Was it the first couple of days or further in? I feel a little dizzy right now. I know that is normal they say...
Thank you!

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Replies to "Good morning Jess-I was wondering when you felt you were able to start taking walks again?..."

Hello Kelli -

My side effects were, fortunately, only in the first few days. I was so relieved when they disappeared - nausea can be something that is not easy to adjust to! I didn't experience any dizziness above and beyond what I experience occasionally with my low blood pressure... I am experiencing NO side effects now which is wonderful. I have tried to stay with daily walks pretty continually (even before) but I felt a real difference in my breathing pretty quickly - (within just a few days) and have started an exercise class for seniors. No cardio in this class but enough movement to note an improvement for certain. This has really lifted my spirits. I have no idea whether Camzyos has any effect on the further advancement of HCP - big question for my Doctor! I suspect not but I am interested in how this will continue to help over time, depending on how advanced one's condition is. ...Always lots of questions !