Tarlov Cyst on the spine: Any advice?

Hi I recently found out I have the cysts on my cervical spine that is causing me issues and I am trying to get an appointment with him as well. Have you had yours yet and did he seem useful for what you are going through?

how are you feeling now?

@j0y hello 👋🏻 thanks for the reply! im honestly not doing to good. There’s even more stuff happening in my health like neoplasms on reproductive organs… need to see the movement neurologist and geneticist… my chest wall is compressing my heart have mild pulmonary hypertension now… but I’m trying to take one step at the time, it’s been really difficult to make surgery decisions and other stuff unable to work and pay for my medical necessities…

Blessings of health 🙏🏻🤍

Hello @armenm2121.
Members like @ilovedaisies and @cookierockwell may be able to share more with you. Are you thinking of not treating yours?

Hi I have been helping my mother following a lumbar fusion. While in the waiting room met 2 ladies whose husbands were having surgery for that very thing. They were from out of town. I cannot for the life of me remember the surgeon but he was very sought after. Which is why they came all the way to Texas for the surgery. It was at the Texas spine hospital medical city Dallas. Apparently the doctor specializes in the tarlov cyst. I will try and find out his name. One had come from colorado the other from Nebraska. Sorry I don’t have more information than this.

I believe it’s Dr.
Feigenbaum, Frank, M.D. (Neurosurgeon)
Feigenbaum Neurosurgery P.A.
Energy Square 1, 4925 Greenville Ave., Suite 1307
Dallas, TX 75206

Phone: (214) 351-8450
Fax: (214) 366-3713

In Dallas associated with Medical City Dallas. Good luck! Prayers for your healing

Hi! I'm slated to get surgery from Dr. Feigenbaum for 6 tarlov cysts. The issue I'm running into is that Aetna won't approve the unlisted codes they are using. Do you have any advice? Also what insurances approved your surgeries?

I have Tarlov Cysts at all levels of the spine. I have chronic pain in the upper right stomach and had my gallbladder removed with the pain still there. I have pain also in the thoracic area of the spine. Left foot numbness, burning mouth and my body aches all over. Can someone point me in the right direction. This all started after a reclast infusion for osteoporosis that landed me in the ER with severe pain in the thoracic area and upper right abdomen pain. Then got worse after Covid vaccine and 3 days later needed up in ER with Chicken Pox.

Welcome @kgrainger, I moved your post into an existing discussion on Tarlov Cysts
- Tarlov Cyst on the spine: Any advice?: https://connect.mayoclinic.org/discussion/tarlov-cyst/

I did this so you can read previous posts and connect easily with other members living the Tarlov cysts, like @aflor @chief2020 @armenm2121 @j0y @kennoct and many others.

Here are some other discussions that may interest you:
- Burning Mouth Syndrome (BMS): Anyone found any relief? https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-2/
- Neuropathy support group https://connect.mayoclinic.org/group/neuropathy/

Thank you