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I have PD (Parkinson Disease)

Parkinson's Disease | Last Active: Dec 8, 2016 | Replies (120)

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@hopeful33250

@trouble43443 I was just noticing your comment about your support group and how difficult it is to keep it going. Since you describe yourself as a "doer type" might I suggest that you get speakers (neurologists, speech therapists, physical therapists, etc.) to come and address your group? Often hearing a speaker can encourage new ideas and can raise discussions to a higher level (as well as being informative). Also, if there is a music therapist in the area, you might add some singing to your support group. Singing has a way of increasing those great endorphins in the brain that make us feel good and by singing with a group we are better connected. Nearby colleges and universities can often supply these type of speakers at no charge and sometimes music therapy students can work with a PD support group as part of their schooling, a type of internship if you will. Keep us informed as to how your group is doing. Teresa

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Replies to "@trouble43443 I was just noticing your comment about your support group and how difficult it is..."

Thank you for the suggestion. We have a speaker from the National<br>Parkinson's Foundation - MN Chapter - this next meeting. We also have the<br>Packs (for hospital usage) we have to prepare so that will be the next<br>meeting. I had thought we might get more support from the place we live<br>(Assisted Living in a Resident setting) but nothing so far. We have a lot<br>of videos we can watch as well, but I have trouble getting the proper<br>equipment, so we'll have to see if we can get some help.<br>Again, thank you.<br>Trouble4343<br>

@trouble43443 What a great start you have made. Good work! In Michigan, we have a variety of programs for the PD support groups including the Mark Morris Dance Program for PD. There have been Occupational Therapists and dance teachers that have been trained and certified in this dance for PD, it can all be done in a sitting position but it is great to increase range of motion, balance and flexibility and a feeling of camaraderie. Keep up the good work! Teresa