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I have PD (Parkinson Disease)

Parkinson's Disease | Last Active: Dec 8, 2016 | Replies (120)

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@colleenyoung

Welcome to Connect @ggopher. We've got a small group here forming about PD. I'm glad you could join us and specifically for your offering useful information for @trouble43443 about taking Sinemet.

Gopher, when were you diagnosed with PD? I like how @denie57 and @trouble43443 have shared the activities (cats, computers and walking when possible) that they do to stay fit and sharp. What are your favorite activities?

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Replies to "Welcome to Connect @ggopher. We've got a small group here forming about PD. I'm glad you..."

I was diagnosed about a year ago. Hadn't smelled anything in 15 years or so, had vocal cord implant supposedly due to Epstein-Barr virus I had the previous year but my voice was getting worse again. Had been told my morning fogginess was due to dehydration and to chug water in the morning. Then a new PA tied those and new symptoms together and sent me to a neurologist and she immediately diagnosed PD. That was a real shock. It is assumed to be tied to Agent Orange from my Vietnam service. Been on 3 Sinemet 25-100 since and symptoms are minimal. Do a couple crosswords a day and work out 3 times a week. Had LSLV speech therapy which helped a lot and belong to a support group through the PD center here in East Texas. <br><br>

The Support Group is a very good thing. It is difficult to keep it "active" when most of the people are not real assertive nor can they speak very loud. I have not lost those two characteristics yet and I am the 'doer' type so I feel responsible for finding something interesting to do or talk about. Are there videos accessible on the computer that we could watch. With only 5 people, we can pretty much gather around one screen. Any topic would be good, because we are all pretty much beginners at PD.

Does anyone with Parkinson's have vision problems"? Mine has been going down hill ever since I was diagnosed/ JJames

@johnjames While you don't mention specifically the type of vision problem you are having I can offer a few thoughts. Often PD can cause a problem with vision, sometimes double vision can result. I have known people through a PD support group who have prisms put in their eye glasses to help correct this problem. There are ophthalmologists who specialize in vision problems with people who have neurological diagnoses, you might consider seeing one of them. I hope this helps.

@johnjames Hi JJames! I hope you had a good Thanksgiving. In your last post you mentioned vision problems. Have you had any discussion with your doctor about that yet? How are you doing otherwise? I hope that all is going well for you.