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RLS Dead End?

Sleep Health | Last Active: May 12 7:49am | Replies (53)

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@ess77

@tim1028, @cookierockwell, and all...Thank you, Tim. I apparently misspoke and stated information solely based on personal experience. I was thrilled and surprised when the ferritin testing was first suggested and I began down this road. All my personal experience is with the sleep department.

Tim, thank you. You are a wealth of support and information. I've been on the RLS Foundation several times and appreciate your referral. It's quite active and helpful. It's great to have another sound resource. Are you participating in the upcoming webinar? It looks interesting but I'm not familiar with the speaker. Do you learn a lot from the seminars and such offered?

I'm anxious to learn more and more about this RLS that's made my life much more difficult for many years with no diagnosis or treatment forever. That's been true of many things with which I've dealt in my crazy health journey. I determined to stop that roller-coaster in 2019 when I came back to Mayo for help. They found answers to questions I didn't know to ask!

I'm off to do more research on the RLS Foundation site. It's full of information and support.
Blessings, elizabeth

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Replies to "@tim1028, @cookierockwell, and all...Thank you, Tim. I apparently misspoke and stated information solely based on personal..."

If you want current, reliable , helpful information, The RLS Foundation is the best source. I personally have not participated in the webinars, but am a subscriber to the quarterly newsletter, Nightwalkers, which I recommend to anyone affected by RLS. Regrettably, many PCPs, neurologists and even sleep medicine practitioners are not up-to-date on Restless Leg Syndrome. As with any medical field, knowledge is expanding exponentially. Take care, Elizabeth.