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<p>Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am 58 years old! Raised 4 children as a single parent and was looking forward to my golden years (travel, hobbies, networking, social etc,) Devastating blow that makes me hopeful that something good will come from this and then in the same hour feeling hopeless and vulnerable. Trying to figure this whole thing out.</p>
Replies to "Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am..."
I was diagnosed with Agent Orange Parkinson's about 2 1/2 years ago, as time goes by does anyone experience how hard the morning are, my body just won't move, my mind is awake and ready to go- but my body just won't follow for at least 1-2 hours. Does anyone else have such a problems, and if so, what do you for for it, It seems to be more and more controlling my life- especially when you can moce very well until almost noon. JJAMES
@johnjames Early morning stiffness is a common problem for PD folks. You don't mention how you take your meds however, often taking some PD med at bedtime can help the early morning symptoms. Also I read an article about Michael J. Fox and he spoke of extended time in a hot shower first thing in the morning. Early morning showers and evening showers as well helps with the stiffness. Does anyone else have suggestions!
Yes the shower does help- but because I have serve Scoliosis of the lower spine ( from jumping out of Helicopters while in the Army for many years- when I retired just a few years ago- my spine bend almost over night- thank God my wife is a nurse and new what it was, it bend 24% to the left and the lower dic' were gone or so deteriorated that I could barley walk. They tried all kinds of the things- shots, pain doctors -tried many things that did not work.. The pain never stops and stays about a 7-8 most of the time- I still go to spooners therapy to learn to work out and box the best I can and stay in some kind of shape. In recon we would jump out from 10-12 feet above the ground with a 60-80 lbs pack on, and when you hit the ground you would stick one leg in a rice pattie- Well enough of war stories, the body is worn out and you do the best you can Thanks for the tip- I will try that more often- have a good day and I hope a little fun along the way, HOOAH JJAMES
@johnjames You show incredible bravery as you did during the war and now in your own personal pain. God bless!
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@denie57 Hi, I've been thinking about you. I hope that you are continuing to adjust to your DX of PD, It can seem overwhelming at first. How is everything going for you? Are you connecting with your doctor on a regular basis? I understand that PD patients do best when they stay in contact with their neurologist. Adjustments to meds, etc. can make a difference. Keep us all at Mayo Connect posted on your progress. We represent a good place to share your accomplishments as well as your struggles!
Teresa