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Extreme pain in my feet. Neuropathy

Neuropathy | Last Active: Apr 29, 2023 | Replies (51)

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@californiazebra

Sorry to hear about all this @jim777 . Much of what you describe matches the various pains and sensations I get. Most of mine is fleeting (10 seconds to 2 minutes), but the stabbing, shocks, toe in a vice all are level 10. Aching and RLS an issue and go for hours. Mostly in evening or at night when resting. If constant I couldn't take it. Getting more frequent and places other than feet. It sounds like yours is more constant. I blame my shoes and socks for a lot of weird sensations that are never their fault since the feeling remains even barefoot. I feel like my socks are strangling my feet, but same sensation barefoot. Numbness is constant for decades.

I'm not sure if your burning is the same as that I had for decades, but rarely get now. My son also had it for a long time. We would suddenly get burning, itching, pain in our hands or feet separate from the other sensations. The palms and soles would turn white with purple polkadots. I thought it was Raynaud's at first, but that really doesn't fit. Not triggered by cold. It usually happened when we were up moving around. I discovered if I elevated my hands and feet it stopped in about 5 minutes. Worked for my son too. I had to hold my arms like "touchdown" for my hands. Looked pretty silly in public. If my feet, then lie on my back on the bed and put my heels up on the wall so my legs were at a 90 degree angle. We both have Hereditary Neuropathy with Pressure Palsies (HNPP). Oddly enough, my leg hair disappeared about 20 years ago. As a woman, that's ideal for me although I knew some disorder was causing it. I always assumed that was a vascular issue, but after reading your note maybe it's the neuropathy? Hopefully, you're able to see a neurologist at Mayo or some other top notch facility where they see more odd cases and are willing to pursue it. Your average doctor just doesn't see a lot of odd cases so they are lost if it's not textbook. Only one of my doctors (neurologist) had heard of HNPP and she came from a teaching hospital. Prayers you get some relief soon.

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Replies to "Sorry to hear about all this @jim777 . Much of what you describe matches the various..."

Thanks for the reply. Money talks when it comes to getting good healthcare. My neurologist was a joke. I rarely were shoes, when I do at the most its 2 hours and sneakers.

Has any meds/supplements helped with pain?