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Hello. I'm new here. I haven't officially been diagnosed with Pulmonay Fibrosis, but I have worsening breathing issues. I have had worsening exhaled breathing from 2020 after the flu, but I think my lung was damaged from my recalled CPAP machine. I was 47 years old when I started using the Philips CPAP machine and now at 49 years old, my exhaled breathing has been worsening. I had a CT scan and breathing test done in December 2022, but nothing showing. My lung volume is declining, but not abnormal yet. I did get Covid in Sept 2022, which worsned my condition. I don't have a diagnosis yet and getting really frustrated with no answers. Anyone have any idea? I suspect I am developing IPF or some kind of ILD, which scares me, but I really need to know. My breathing problems do not respond to inhalers. Has anyone followed the same history as me or anything similar?
Side note: Has anyone acquired pulmonary fibrosis after using a recalled CPAP machine?
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I was diagnosed in 2020 with ILD. The best advice my outstanding pulmonologist gave me was "walking is super important." I have walked every day since. I am also on Cellcept. My PFTs are normal and I feel fabulous. I may discontinue cellcept by the end of the year. There can be light at the end of the tunnel. Make sure you have a great pulmonologist!