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Kidney Transplant: Does your creatinine bounce around?
Transplants | Last Active: May 27, 2023 | Replies (68)Comment receiving replies
i cannot thank you enough and let you know how comforting your message is. so appreciative.
I will pass this along to our son... and see what the doctor says when he gets the latest.
Our son has been trying to do everything as per the doctors orders... but we were not prepared that 4 months in there would be new challenges at each appointment... so we are mentally adapting to that.
the other thing we have been doing "wrong" is that we have shut ourselves to the world... trying not to expose him to any new virus and keeping him safe. so all 3 of us work from home. do our shopping all online and really our social life has been outside with family members or just by phone... we have been used to this thru covid... so just carrying on... but we are understanding that this is not healthy since the "recovery" of a transplant is much longer. what advice do you offer in getting back to living!!??? thanks,
maria
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Hi @mariasg 😊
Yes, you are correct that the physical recovery of the transplant surgery is pretty quick. In about 6 weeks, the recepient can drive and the incision is healing nicely, etc.
For me, being over-immune suppressed with extremely low WBC (neutropenia and leukopenia) and infections have been the on-going challenge.
I had CMV at my eight month anniversary, and I just started to turn negative on my BK virus labs after 8 months of biweekly labs (it's still present in the urine).
The good news is that now I believe my immune suppression meds are in the "sweet spot" and my WBC is 4.8. (But remember, I am approaching my 3 year anniversary).
I think protecting your son from infection will always be a priority, but it's critically important during this period of time with his extremely low WBC. Until his WBC is closer to range, he is extra vulnerable to catching something.
Until the team is able to adjust his meds so your son has a reasonable WBC, continue to be extra careful.
Even now, I am very careful where I go. If I go to a restaurant, I go on an "off time" and sit outside with people that I know (I live in Florida), I wash my hands regularly, ask for well-cooked meals, wear a mask in all offices, stores, elevators, etc.
Once your son's WBC numbers improve, you can all start getting out more!
Of course, don't forget that you can all get out now and enjoy a nice walk outside in the morning and evening.
I take my mask with me so I can stop and chat with my neighbors outside and then continue on my walk. It's great exercise, I get to see and socialize with my neighbors, I get some nice delicious fresh air, and nature is so emotionally comforting... I highly recommend it as a family or separately. Also, if there are local parks, walking trails, beaches, etc...they are all great spots to walk even with a low WBC! The low WBC issue will definitely be resolved, but until it is, be extra careful. 🥰