Dry skin/mouth Bendamustine/Rituxan
Hello - my husband is getting ready for Round 3 of bendamustine/rituxan for NHL Follicular Lymphoma and just today mentioned that his mouth was dry for a little while and then tonight said that his skin was quite dry and that he had tiny flakes on his stomach brush off. He asked me if
"this stuff dries you out?" I do not know. Thanks for any enlightenment.
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Good morning, @valandsheri Dry skin and dry mouth while undergoing chemo is very common. There are products on the market to help combat dry mouth such XyliMelts, Biotene products (there are several from that company), chewing gum with xylitol, ACT soothing mint lozenges, etc. Drug stores usually have a shelf dedicated to these products.
For skin, VaniCreme, Cetaphil are good. For small patches petroleum jelly works wonders. Youāll want to look for products that are free of steroids, parabens, dyes and colorants, fragrance.
Here are a couple of articles to help explain whatās going on with the lizard skin. āŗļø Hope this helps sooth Valās skin.
https://www.verywellhealth.com/chemotherapy-side-effects-dry-skin-management-513899
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https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/hair-skin-nails/dry-skin.html
It might be trial and error until he finds the perfect product.
Hi Lori! Thank you!
Hoping Spring has Sprung for you. Mother Nature, in our neck of the desert, is bipolar. Thatās all I can sayš¤£š¤£š¤£š»š¤£š¤£š¤£
Weāre moving forward - next week Round Three. Kind of getting a little feel for how Val will feel for the first two weeks or so after treatment - it kicks his but with fatigue. Remember when he said he didnāt want to feel like crap and you said he would? Seems like ages ago. Weāre figuring out to try not to figure anything out. A new behavior for me, for sure. Stuff happens fast and without warning. Good and badšµāš«.
His only whining in the last couple of days has been his hankering for a Jersey Mikes sandwich. Deli style. Thatās a big fat no. He took the NO well, actually.
How are you? Howās the cleaning out of stuff going?
š»š»ā¤ļøā¤ļøš»š»
Thanks for the info!
Round two starts on April 12 for me and Iām going to be proactive, thanks Lori.
Hi @rod54 Sorry to hear youāre also needing chemo. One of my chemo nurses used to jokingly refer to it as ājoy juiceāā¦Not even close! š But here we areā¦reminiscent of the old science film strips I recall from grade school with the monotonous voice of the narrator saying āBetter living through chemistry!ā Unfortunately, while itās knocking cancer cells from our body it can have an effect on other cells too with dry skin, mouth sores, gut issues, hair loss, nausea, low blood numbers and fatigue.
Have you been experiencing any side effects from your first round of chemo?
Good morning āļø
I didnāt realize that you are in each section of the Connect! I was very glad to see you here tooš
Thanks again for the links.
I was so surprised at how quickly his skin dried out! He does have dry skin as heās gotten older - so this just added to it. For an anti- lotion guy heās using it liberally. So many changesš
The day before Val started with a little, annoying dry coughā¦.heās historically done this at this time of year with allergy season. Of course, He took guafenisin before I called the Mayo hematology nurse line. They did a complete assessment and so far no call back. She felt taking the guafenisin was fine. He does not have a fever, no runny or stuffy nose, no phlegm, etc. and feels as well as possible right now. The nurse gave me specific instructions on what to watch for, what to do, etc. oh my.
Have a good weekend. š»š»
Everything was going well while I was being infused with the Leucovorin, Oxaliplatin, Irinotecan, and after that I was equipped with the Fluorouracil and a pump for a 46 hr period. About 10 minutes later my heart was pounding so we had to go back to chemo unit. BP was 191/84 HR 111.
Disconnected pump and I was sent to the ER. Was released from ER not knowing for sure which drug caused reaction. Will continue same regimen for round 2.
Spooky, arenāt I!?! š Though I pinch hit in other areas when needed, the āHalls of Connectā where I tend to focus my direction are in: Transplant, Blood Cancers & Disorders, Cancer, Cancer: Managing symptoms, Visiting Mayo.
Members are free to roam all groups of Connect where they can use their life experiences and knowledge to help out other members and offer encouragement. Weāre like a huge family. Iām the old auntie at the kitchen table sticking her nose in everyoneās businessā¦but means well. šµš»š
Back to your Mr Sunshine. Ah, another of the indignities of agingā¦ dry skin. Chemo will also play a part in that so hopefully once Val is off the chemo just a light coating of a lotion after shower will be enough to sustain him. But during chemo, he may need some help.
I had quite a counter full of oils and potions! Besides the Cetaphil and Vani-crĆØme given by the hospitals, I needed some extra help. Burtās Bees baby balm really kept my forearms and legs from being extras in a sci-fi movie. Some areas are still damaged 4 years later and feel like rubber.
A product that I really love lately is Andalou Naturals Skin Uplifting Body Lotion, Citrus Sunflower. It feels really nice and fades into the skin without feeling greasy.
Youāre a super caregiver, Sheri! Right on top of all these new symptoms and doing exactly as you shouldā¦checking in hematology. While heās immunocompromised small things can escalate quickly so itās always appropriate to err on the side of caution! You get another good star. Hahah I can hear this conversation at your house thoughā¦Val doesnāt like being coddled and hovered over but youāre tough enough to stand up to him. āŗļø
Keep up the good work! Heāll thank you for it somedayā¦š
As for a good weekend, weāre expecting 6ā-10ā inches of snow tonight/tomorrow with blizzard potential winds. Mother Nature didnāt get the memo that Spring has arrived! šāļøāļø
Thatās always scary when you have a reaction like that with a medā¦and not sure which one. Had a few of those too but eventually it got sorted out. Sometimes itās the rate of flow of the chemo drip that needs to be reduced.
Will you be able to stay in the infusion center or the hospital to monitor this time?
Very scary indeed. During Valās 2nd infusion he had a reaction to the Rituxan. His previous infusion was fine. It was weirdā¦first he got cold, then his back started to hurt. The nurses sorted it out, gave him what I called āanti-venomā and back on track he went. It was exactly what you said, Lori, the infusion was too fast. Strange that it happened on the second infusion, and with only seven minutes left on the bag. We are in the land of strange, though!
Oh you are such an intuitive soulš» you are so right about the hover/stand my ground show. Almost like you are here for it!
Snow! Ugggh. Weāre supposed to have a couple of warm days this weekend. Iāll be running around like a two-headed woodpecker trying to catch up/get ahead with my yard work. Ha! Until the body screamsšµāš«šµāš«šµāš«.
Have a great weekend. Stay warm!
And Stay Spooky! So grateful that you are here and giving your caring words of encouragement. A Ghost Hug coming your way! š„°š„°