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Kidney Transplant: Does your creatinine bounce around?
Transplants | Last Active: May 27, 2023 | Replies (68)Comment receiving replies
Hi @mariags 😊
It is a pleasure to meet you!
I am approaching my 3 year kidney transplant anniversary. Congrats to your son on his 4 month anniversary!
I had the same WBC challenge at my 4 month anniversary. I was taking 1,000mg bid Mycophenolate and 6mg Envarsus XR (Tacrolimis).
Of course at 4 months, the immune suppression meds are at their highest (and there is normally residual of the immune suppression induction that was given in the operating room).
When I developed CMV, the immune suppression was reduced to 500mg bid Mycophenolate and Valcyte was added as the antiviral med to fight the CMV.
With the reduction of Mycophenolate, my leukopenia, neutropenia and high liver enzymes resolved. What is your son's transplant team telling you regarding their plan to resolve the low WBC? (It's a very common side effect of Mycophenolate).
Did they add Valcyte when CMV appeared and are they planning on reducing the Myfortic or making any changes? Or are they concerned that 4 months is too early to reduce or change?
I assume they are aware of the low WBC and CMV and you have discussed this with the transplant nephrologist at the transplant center?
Replies to "Hi @mariags 😊 It is a pleasure to meet you! I am approaching my 3 year..."
There's been a mistake. Hello1234 intended to just respond to somebody apparently named mariags whereas I'm mariasg. I don't have any children.
Hello 1234, I'm glad you've already reached your 3 year anniversary. Congratulations, and as the song goes, have many more. I hope there's a party to celebrate, maybe with a cake shaped like a kidney and dishes with kidney beans.
Mariags, I hope this is just a bump in the road for your son's recovery and that you'll be able to get out more in the future. You remind me of one of the reasons why I continue to wear a mask when I'm indoors with people I don't know, like at the supermarket. You never know who might need to be protected from other people's germs, and it's everybody's responsibility to protect one another. We need to model good behavior. "I don't like wearing a mask" isn't an acceptable attitude unless there's a medical or mental health reason why a person can't do so.
This looks like a wonderful support group, and it's great that people like hello1234 and dougcornoyer can share their experiences with people who are much earlier in their transplant experience. I wish all of you uncomplicated recoveries and long lives.
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Thank you so much for responding.
our son is taking myfortic. he was on the highest does of 720 (360 twice a day). Tac 7mg. and valganciclovir, and atonovoque. But once the WBC went to 1.2, and they started him on gastrophil injections, they lowered the myfortic to its lowest dose of 360 (180 twice a day) and the took him off the valganciclovir feb 14. He did a biobsy march 2nd. no sign of rejection or infection. but on march 22nd the cmv results came back slightly higher... normal is 20... he was at 35. so they are just monitoring it. he repeated the cmv test yesterday and it takes 5 days to get the results. so right now they are just hoping his body fights it and did not restart the valganciclovir yet. yesterdays blood results was Creatinine 181 (highest that it has been since transplant (ranged from 153 to 181 post transplat). WBC 2.8 and neutrophil 1.97. thanks for taking the time to read this and offer any experience or suggestion you have had... very nice to meet you. my name is maria