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DiscussionCarcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH
Neuroendocrine Tumors (NETs) | Last Active: Dec 28, 2023 | Replies (42)Comment receiving replies
Replies to "Hi @triveraderubio and others with DIPNECH and Lung NETs. I hope the octreotide is working for..."
Thank you for sharing your experience. As I read your story it seemed just as complicated as mine.
The Sandostatin has controlled my cough and while I still feel fatigued, it is much less. You mentioned hair thinning ….it’s interesting because I noticed this too and so did my friend who is also my hairstylist.
Because I am Towards the 5th mark of treatment and have the chronic stomach pains, Just recently I underwent chest X-ray with contrast, abdomen Ct scan and guided thyroid biopsy. The nodule on my thyroid has increased its size and two small ones appeared. My liver is oversized and the radiologist leans towards the hepatocellular disease and my gallbladder has no stones, but has “slush”.
I received a call from a nurse practitioner of the oncologist department where I work (United Healthcare) and she is insisting that I go to Mayo Clinic.
My oncologist has told me that in his years of experience, I am the most challenging patient he has ever had.
My journey for the past year and the years that lead up to it, have been interesting.
My next appointment with my oncologist is on the 6th. I will know more then.
Again, thank you for sharing.
May you be blessed.