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Hydroxyurea side effects lessen over time?
Blood Cancers & Disorders | Last Active: Mar 31, 2023 | Replies (36)Comment receiving replies
I have been on 500mg per day for the last 6 weeks 4 weeks ago my platelets finally returned to normal 430 (her lab is 440 or under is normal) then 2 weeks went by recheck them and went back up to 478. Kinda disappointing thought 500mg per day would continue to lower them. Does anyone else have issues of platelets going up and down . Starting to think stress makes them go up. It’s crazy platelets do what they want.
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Yes!! My platelets were at 777 in the beginning. After four weekly phlebotomies and four weeks of 500 mg daily of HU, they dropped to 220? Stopped the HU for four weeks and my platelets jumped back to just over 600. Back on HU now 5days on 2 days off. After 7 doses my platelets dropped 220 points with no recent phlebotomies. Hematocrit jumped to 48 so I just had one last week. I’m seeing the platelets drop about 100 after a phlebotomy, so I’m waiting to see how this plays out. I was just diagnosed in January this year. Honestly, I’d rather do monthly phlebotomies than take the meds and do them bimonthly or every 6 weeks. I’m just 56 and have no other health issues. I’ve read it takes several months to get some sort of normalcy, if that’s a thing. I’m grateful I’m on a low dose but let’s see how this plays out at my next labs next week. Doing them every two weeks currently. KIT