Connect
Comment receiving replies
I’m curious about the Mayo Clinic RLS Specialists. We’d need to travel from a rural area in Eastern Washington (with only 1 flight/day that connects through Seattle), to the Bay Area in California. The flights would be difficult because of my husband’s RLS, as well as costly given airfare & hotel. How frequently would we need to see the specialist?
My husband has tried every drug approved for RLS, Magnesium, Vitamins B12 & D, Calm, leg massager/heaters, weighted blanket, walking (of course), sleep specialist/CPAP machine, marijuana, ferritin level monitoring & most recently a shiatsu massage mat.
He has found that oxycodone give temporary relief, but it makes him drowsy.
Does my husband need a referral from his primary physician, the local sleep center or his neurologist? Each one has a piece of the puzzle.
Replies to "I’m curious about the Mayo Clinic RLS Specialists. We’d need to travel from a rural area..."
Connect
@akhw, @cookierockwell, @tim1028, and all...Mayo doesn't have an RLS specialist. I actually was first tested by the Mayo sleep dept after an overnight sleep study showed serious RLS difficulties. She ordered the ferritin level testing and the 2 separate IV infusions I've had to date. My PCP will hopefully take over this process, but since I regularly visit the sleep dept for follow-up she may as well. I use a bi-pap with oxygen added at night. That has truly been a lifesaver for me. I was better with the bi-pap, but adding the oxygen after needing it during a hospital stay has been lovely. I sleep much better, and deeper, and definitely notice a difference with O2. What a help.
It sounds as if you and your husband are accomplishing a lot in addressing RLS. I love the weighted blanket. I find it helps me greatly. Living in Florida, I use it on my lower body and often just on my feet and shins, even in the summer months. It's quite helpful.
Off to bed. Blessings. elizabeth