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JAK2 Mutation - Effects and Questions
Blood Cancers & Disorders | Last Active: Mar 15 8:02pm | Replies (304)Comment receiving replies
Hi, welcome to the “scary” club. I’ve had ET for a few months now, but was diagnosed with JAK2 positive gene mutation last week. My hematologist said not to look it up online, as there’s a lot of scary stuff out there. Ha ha. But if I do, keep in mind a lot of it doesn’t apply to me. He said I do not have Cancer with a big C.
At this point in time, I am taking an 81 mg baby aspirin, and two nattokknese daily. We are all different, and I just had more blood drawn this week as he tries to learn if my bone marrow is releasing immature platelets, or if my liver is not recycling the old ones as timely as it should.
Hang in there! I have not told many people as you know they’ll look it up.
This is a good forum. Glad to not be alone.
Replies to "Hi, welcome to the “scary” club. I’ve had ET for a few months now, but was..."
Hello, I see you're taking both Nattokinase and aspirin. I just started on my journey being diagnosed with ET & Jak 2 positive. I was taking 2 NK for 4 months - overall good health. Now I was told by my specialist to take baby aspirin and I've been taking it for the past month. Reading online it suggests not to take both. I'm just concerned for extra bleeding or thinning of the blood. I Plus the docs told me to stop the NK.
May I ask how long have you been taking both? I also take Curcumin, Bromelain and Resveratrol along with NAC. I'm hoping the platelet numbers go down and don't have to go on HU as he already suggested. I declined presently.
Look forward to any help.
Thank you
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The WHO has designated ET with Jak2 is a chronic cancer. And HU is considered chemo, I notice my platelets rising over 3 years of wellness exams, and asked my primary, he sent me to hematologist, had many blood tests plus bone marrow biopsy to confirm diagnosis. Had second opinion with all lab results, including slides from BMB and concurred with diagnosis. I've been on HU for 3 years now with baby aspirin, rather take meds than have stroke or heart attack.