Hi, welcome to the “scary” club. I’ve had ET for a few months now, but was diagnosed with JAK2 positive gene mutation last week. My hematologist said not to look it up online, as there’s a lot of scary stuff out there. Ha ha. But if I do, keep in mind a lot of it doesn’t apply to me. He said I do not have Cancer with a big C.
At this point in time, I am taking an 81 mg baby aspirin, and two nattokknese daily. We are all different, and I just had more blood drawn this week as he tries to learn if my bone marrow is releasing immature platelets, or if my liver is not recycling the old ones as timely as it should.
Hang in there! I have not told many people as you know they’ll look it up.
This is a good forum. Glad to not be alone.