← Return to I have JAK2 ET and MPN: Anyone else have these symptoms?

Discussion
Comment receiving replies
@sregiani

My platelets have increased over the past few months, now seeing a hematologist who just confirmed JAK2 positive. He said “not cancer” , put me on an 81mg aspirin, has me on 2 nattokinese/day, and ordered more tests. CD8 shows mild immune issues.
Anyone on LDN or low dose naltrexone? He and my PCP said these are options along with other meds.
I had cataract surgery last summer and my right eye is giving me vision problems. I’d blamed the surgeon, but from what I’ve read, there are vision issues with ET, too.
This is frustrating. I’m an otherwise healthy almost 71 yo woman who eats almost exclusively organic and work out 3x/week. The hematologist said not to look it up, there’s scary stuff online (no kidding!)
Ideas and suggestions welcomed and appreciated!

Jump to this post


Replies to "My platelets have increased over the past few months, now seeing a hematologist who just confirmed..."

Welcome, @sregiani. I moved your message to this existing discussion about essential thrombocythemia
- I have JAK2 ET and MPN: Anyone else have these symptoms? https://connect.mayoclinic.org/discussion/jak2-et-and-mpn-symptomscause/

I did this so that you can easily connect with other members with ET and the JAK2 mutation like @eileen11108 @annetterzam, @ttown @dancouclanel4 and many others.

You may also be interested in these related discussions:
- How does ET affect one’s vision? https://connect.mayoclinic.org/discussion/how-does-et-affect-ones-vision/
- Essential Thrombocythemia: Looking for information and support https://connect.mayoclinic.org/discussion/essential-thrombocythemia-1/

Have you had a bone marrow biopsy to diagnose?