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RLS Dead End?

Sleep Health | Last Active: May 12 7:49am | Replies (53)

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@akhw

Thanks. I ordered a shiatsu mat that’ll be here on Friday. Then we can fight over who gets to use it as I could use it to help with my own issues. I’ll report back on how his RLS responds to the mat.

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Replies to "Thanks. I ordered a shiatsu mat that’ll be here on Friday. Then we can fight over..."

@akhw, @tim1028, @cookierockwell, @colleenyoung and all...So many folks having RLS problems. I'm so sorry to see such suffering, as I'm one of you. I was diagnosed a couple of years ago with RLS during a sleep apnea overnight sleep test at Mayo Florida. I knew what was happening but didn't have a name for it. I suffered from every RLS symptom for years, day and night. The sleep doc ordered a ferritin test to test the level of the ferritin protein in my blood. Apparently, this protein is responsible for getting the iron we make to the intestines for use throughout the body. Ferritin levels are frequently low in RLS patients. They prefer the test to show 100+ levels to help reduce the symptoms.

That first ferritin test results were 25. Pretty low. Normal is up to 300. So, to have a 100 result seems simple. Nope. I've yet to go over 88, the highest result following 2 IV iron infusions 2 years ago. Wow! What an improvement. I could barely walk into the infusion room with my hot pink walker. Within a couple of weeks, I was able to walk up and down the stairs in my home, on my feet, still pulling myself up as I walk, but able to move. Those infusions were a life changer for me.

Since RLS improved greatly. It seems I don't absorb nutrients well, so I had more infusions last year in November. Now, my ferritin levels are down again, so I expect to have more infusions soon.

That's fine with me. If I have to have infusions several times annually I'm a happy girl as they really help. My hematocrit and hemoglobin are always at normal, good levels. The ferritin test and protein panel results tell the tale.

I also take magnesium supplements daily, D3, and B12 injections weekly, Super B supplements daily, and potassium and other supplements. I'm also using Probulin Colon Support Probiotics and Dr. Gundry, MD biome supplements to help my leaky gut and help with the intestine issues. I'm feeling better now than in many years since all these supplements are reaching my organs.

I also take 1-2 CBD gummies for women over 50 and some 1x1 tincture, CBDxTHC. These help with anxiety, insomnia, general relaxation, and of course the RLS. I also use Voltarin cream if I'm having more leg discomfort. If I don't drink enough water I will have issues. It's vital for us to hydrate well daily.

I hope this information helps some of you or leads you to find your solutions. Be blessed.
elizabeth