Interesting reading the above.
I too have PMR, GCA and Peripheral Neuropathy, my PN was directly linked as a side effect while taking Arava (Leflunomide) it is a known side effect. Interesting though to read the above and hear others stories of PN.
I've had peripheral neuropathy since developing PMR on Feb 14, 2023. The intensity varies throughout the day and night.
There is tingling on my palms, fingers, and hands, stronger near the thumbs and forefingers, but across the entire front of the hand and less so on the back of the hands.
I also have it on my feet bottoms, more on the inside near the arch, but stretching from heel to big toe.
It seems prednisone lowers it at times. It also sometimes changes the tingling to more of a cool feeling.
I've had peripheral neuropathy since developing PMR on Feb 14, 2023. The intensity varies throughout the day and night.
There is tingling on my palms, fingers, and hands, stronger near the thumbs and forefingers, but across the entire front of the hand and less so on the back of the hands.
I also have it on my feet bottoms, more on the inside near the arch, but stretching from heel to big toe.
It seems prednisone lowers it at times. It also sometimes changes the tingling to more of a cool feeling.
Thanks for your reply. My neuropathy is only on the bottoms of my feet. Since starting the prednisone, it’s gotten more painful. I take gabapentin and it dulls the tingling and pain.
Thanks for your reply. My neuropathy is only on the bottoms of my feet. Since starting the prednisone, it’s gotten more painful. I take gabapentin and it dulls the tingling and pain.
I also have Neuropathy in my feet .I elevate them above my heart on a triangle foam.Also rub them with Aloe Vera gel.
Try it ,it works for me. Cheers from Calgary.
P. S. My PMR started after my covid shots am on 4mgs.
I've had peripheral neuropathy since developing PMR on Feb 14, 2023. The intensity varies throughout the day and night.
There is tingling on my palms, fingers, and hands, stronger near the thumbs and forefingers, but across the entire front of the hand and less so on the back of the hands.
I also have it on my feet bottoms, more on the inside near the arch, but stretching from heel to big toe.
It seems prednisone lowers it at times. It also sometimes changes the tingling to more of a cool feeling.
The peripheral neuropathy in my feet has gotten worse and there is sometimes significant numbness around my ankles, and I have reduced control of my feet muscles.
It makes my walk awkward, but I can still get around.
Apparently PMR can itself often generate this sort of nerve damage.
The peripheral neuropathy in my feet has gotten worse and there is sometimes significant numbness around my ankles, and I have reduced control of my feet muscles.
It makes my walk awkward, but I can still get around.
Apparently PMR can itself often generate this sort of nerve damage.
@redboat, Sorry to hear PMR is causing problems with neuropathy and walking. I have both neuropathy (numbness only) and PMR which is now in remission. When my PMR was active and flaring bad, I had difficulty walking due to the pain but I'm not sure it was nerve damage.
I was not very proactive with my first occurrence of PMR and basically let it progress until I could no longer walk or drive. I remember having to crawl up the staircase since our bedroom is in the lower level of our house, and my wife drove me to my appointment with the rheumatologist at Mayo Rochester. Went in with a wheelchair, diagnosed with PMR in the morning, fluid drained from one of my knees, picked up prednisone RX at the Mayo Pharmacy, took 20 mg dose at 11am, had lunch, then went to a follow up appointment at 2:30 with the rheumatologist. The miracle was that I walked back to the car and was able to drive home.
Hoping you get some answers at your neurologist appointment and can give us an update.
The peripheral neuropathy in my feet has gotten worse and there is sometimes significant numbness around my ankles, and I have reduced control of my feet muscles.
It makes my walk awkward, but I can still get around.
Apparently PMR can itself often generate this sort of nerve damage.
Sorry to hear that the PMR is generating neuropathy symptoms. I hope once you can get the PMR under control the foot symptoms will dissipate. Somehow it all seems connected! My neuropathy was before the PMR, but maybe it is connected. Good luck.
Connect
Connect
Like
Helpful
Hug
Interesting reading the above.
I too have PMR, GCA and Peripheral Neuropathy, my PN was directly linked as a side effect while taking Arava (Leflunomide) it is a known side effect. Interesting though to read the above and hear others stories of PN.
-
Like -
Helpful -
Hug
1 ReactionWell I'm glad your neuropathy symptoms went away. I don't think mine will as I taper off the prednisone.
Thanks for your input.
I've had peripheral neuropathy since developing PMR on Feb 14, 2023. The intensity varies throughout the day and night.
There is tingling on my palms, fingers, and hands, stronger near the thumbs and forefingers, but across the entire front of the hand and less so on the back of the hands.
I also have it on my feet bottoms, more on the inside near the arch, but stretching from heel to big toe.
It seems prednisone lowers it at times. It also sometimes changes the tingling to more of a cool feeling.
-
Like -
Helpful -
Hug
1 ReactionThanks for your reply. My neuropathy is only on the bottoms of my feet. Since starting the prednisone, it’s gotten more painful. I take gabapentin and it dulls the tingling and pain.
I also have Neuropathy in my feet .I elevate them above my heart on a triangle foam.Also rub them with Aloe Vera gel.
Try it ,it works for me. Cheers from Calgary.
P. S. My PMR started after my covid shots am on 4mgs.
-
Like -
Helpful -
Hug
1 ReactionI use a thc salve. It helps.
The peripheral neuropathy in my feet has gotten worse and there is sometimes significant numbness around my ankles, and I have reduced control of my feet muscles.
It makes my walk awkward, but I can still get around.
Apparently PMR can itself often generate this sort of nerve damage.
I've asked to be referred to a neurologist.
-
Like -
Helpful -
Hug
1 Reaction@redboat, Sorry to hear PMR is causing problems with neuropathy and walking. I have both neuropathy (numbness only) and PMR which is now in remission. When my PMR was active and flaring bad, I had difficulty walking due to the pain but I'm not sure it was nerve damage.
I was not very proactive with my first occurrence of PMR and basically let it progress until I could no longer walk or drive. I remember having to crawl up the staircase since our bedroom is in the lower level of our house, and my wife drove me to my appointment with the rheumatologist at Mayo Rochester. Went in with a wheelchair, diagnosed with PMR in the morning, fluid drained from one of my knees, picked up prednisone RX at the Mayo Pharmacy, took 20 mg dose at 11am, had lunch, then went to a follow up appointment at 2:30 with the rheumatologist. The miracle was that I walked back to the car and was able to drive home.
Hoping you get some answers at your neurologist appointment and can give us an update.
-
Like -
Helpful -
Hug
2 ReactionsSorry to hear that the PMR is generating neuropathy symptoms. I hope once you can get the PMR under control the foot symptoms will dissipate. Somehow it all seems connected! My neuropathy was before the PMR, but maybe it is connected. Good luck.
-
Like -
Helpful -
Hug
1 ReactionYes.