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Median Arcuate Ligament Syndrome (MALS)
I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?
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Thank you. I started out here and eventually found the online Facebook groups. Thanks for your information.
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Thank you for the info about the FB group!
I would.
They are different. MALS comes from a blockage from pressure from the mediun arcuate ligamate, but left untreated, it can cause an aneurysm.
So sorry to hear this . I had c.diff in 2014 and had to have a fecal transplant. I was diagnosed with mals in 2021 .
I am currently in bedridden nonstop pain living on high dose opiods .
I believe my c.Difficile comes back as repetitive c.diff bc the pain is excruciating.
The mals pain is also excruciating. I keep getting hospitalized for pancreatitis or liver enzymes going very high causing insane pain .
I sm going yo Utah to see Dr. Richards on September 5 th . I’m going to Utah also on September 20 to have my celiac plexus block. I live in Las Vegas and there aren’t any qualified interventional radiologist here. I had a anesthesiologist. Tell me he could do my block last summer and he did it, and did it incorrectly and didn’t know what he was doing. Anyways, I believe due to the mals and the fact that our intestines ,pancreas and liver do not receive the proper blood flow and we experience constipation which is why we get c.difficile sale in SIBO . and other infections.
Hi -- I had laparoscopic surgery for MALS last November, and the pain is now back. I don't seem to have a path forward here in North Carolina. My GP ordered a CT scan and the results suggested that the flow through the celiac artery has improved, but I have worse nerve pain than before. No next steps here. Any suggestions or thoughts?
For Neurogenic MALS you need to have a ct scan with pictures taken on inhale and exhale, have a diaphragm that’s low and a CP block which you can eat with no pain. Many doctors treat mals as a blood flow problem only.
I had all those things before the surgery last year.
I have chronic abdominal pain caused by nerve damage in my abdomen following a surgery in March. This past week I had my first Ketamine Infusion after reading a lot of information about it. So far I have not seen any great results, but it may take a couple of days I am told. I have also been told that I may need to have one or two more infusions in the next couple weeks to see any reduction in pain.