1. < Neuropathy

Small Fiber Neuropathy: What helps?

Posted by lisadog33 @lisadog33, Mar 28, 2017

I have been diagnosed with Small Fiber Neuropathy. My problem is this. Since before they diagnosed me, I was having other symptoms that I thought were not related including loss of appetite/weight loss, bladder control, bowel control, problem with eyesight at times, tremors, sleep issues among some other things. I was told by my Neurologist that those things are not related to small fiber neuropathy but when I look it up, it says it can affect your autonomic nervous system. What is the truth. I am having a heck of a time with bladder and bowel issues as well as either sleeping through the alarm or not sleeping at all. I hope someone can shed some light on this for me. Thank you.

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bmelvin | @bmelvin | Mar 13, 2023
In reply to @bmelvin "Thank you so much, When this initially happened I was treated with 5 days of steroids..." + (show)
@bmelvin

Thank you so much,

When this initially happened I was treated with 5 days of steroids and 5 days of IVIG. I am going to read what you sent me to see if the people in cohort received more treatments. Thank you again for the information!

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Hello,

I am sorry to bother you again. I just called the head of Neurology at Mass General who specializes in small fiber Neuropathy. Of course, I was was met by being asked to leave a message. I am having a hard time finding the study you referred to online. If it is possible to send me the link, I would appreciate your help tremendously. Thank you!!!!

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julbpat | @julbpat | Mar 14, 2023
In reply to @lacy2 ".....would a painful flushed face mainly cheeks and nose, burning feeling whether flushed or not, since..." + (show)
@lacy2

.....would a painful flushed face mainly cheeks and nose, burning feeling whether flushed or not, since June 2022 possibly be SFN? I am waiting 7 months to see Neurologist I saw years ago 2016 for hands and feet p.n. after meds. Saw dermatologtist who had no diagnosis so on my own til end of April when see Neurologist.... Clinic where I go has no idea (nurse practitioners) and have offered no suggestions how to cope with the burning that now goes to lower jaw and neck and am beside myself with pain for hours...only today I discovered a site re SFN and sure sounds possible, thank you

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When I have an appointment, I usually call once a week to see if they have any cancellations sooner. Sounds like a neurologist will be able to help, especially since you have a history of PN. Read all you can find and see if there are other clues in the past seven years that might be linked!

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katee | @katee | Mar 25, 2023

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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7 replies
Illa C. Chambers | @illac | Mar 25, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
@katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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Thank you so much for sharing that is totally awesome anything solution that works is definitely better than nothing. Have an amazing rest of your week.

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madison2023 | @madison2023 | Mar 26, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
@katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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Magnesium before bed has really helped me to sleep. I do not have symptoms overnight. My doctor suggested magnesium. I bought magnesium citrate since it came in gummies (and it has worked). However I was recently told by a nurse friend that magnesium glycinate would be even more beneficial for nerve health. There is a difference in how the body absorbs it.

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jonelson4 | @jonelson4 | Mar 26, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
@katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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I have been taking magnesium glycinate at night, too, and it is helping. I also take B12.

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1 reply
michael149 | @michael149 | Mar 26, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
@katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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was it hot or cold water

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1 reply
unclefreddy | @unclefreddy | Mar 26, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
@katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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What dose of magnesium? We’re your magnesium levels tested first and we’re you deficient?

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1 reply
jonelson4 | @jonelson4 | Mar 27, 2023
In reply to @unclefreddy "What dose of magnesium? We’re your magnesium levels tested first and we’re you deficient?" + (show)
@unclefreddy

What dose of magnesium? We’re your magnesium levels tested first and we’re you deficient?

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I take 500 mg magnesium glycinate before bed. Also take 600 mg alpha lipoid acid and 1000 B12 in the morning. I have not had my magnesium levels tested. In addition to tingling and burning legs and feet when sleeping, I had muscle cramps and was advised to take magnesium before bed.

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1 reply
madison2023 | @madison2023 | Mar 27, 2023
In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)
@katee

Something that has helped me with peripheral neuropathy.
My foot neuropathy was the result of chemotherapy. I was experiencing severe cramps in my toes at night, I have been taking magnesium and this has stopped them. Another thing I have discovered Is “Epsom salts”. I soak my feet in water the the added epsom salts and have got some feeling back. I have only been doing this a short time, so don’t know where it is going yet.

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I take 200mg of magnesium before bed and 1000 B12 and vitamin D in the morning. According to my neurologist, magnesium is a supplement that can help but not hurt you. You should not take it on an empty stomach though.

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