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Replies to "Please provide any positive or negative feedback on Meganx. My doctor provided me some samples of..."
Metanx is simply a multivitamin containing all of the B vitamins (B1, B6, B12, etc.) You can get similar products anywhere so don't pay extra for a presciption version.
Are you a doctor?
My husband has pn from his feet to chest. After 4 years he has no real diagnosis. He has been to UCSF had so many blood tests, spinal tap and MRI. Anyone have similar story? He has had prednisone which helped for a while and infusions of remituxin but no change.
Diagnosed with idiopathic small fiber neuropathy in feet. Neurologist prescribed Metanx for me. Used it for six months, no change in my symptoms but hopefully it'll work for you!
What are your symptoms? If you don’t mind me asking
Hello @ccstahl. I see you've had several members join you to discuss Meganx, which is great! You will notice I did move your post into an existing discussion on the same topic, which you can find here:
- Meganx: https://connect.mayoclinic.org/discussion/metanx/
I was put on Metanx by one doctor. When I finally got an appointment with a neurologist, he thoroughly tested me and discovered through blood work that my neuropathy was caused by an autoimmune disease, CIDP, but the Metanx caused my B6 levels to be dangerously high, in the toxic range. My B1 levels were dangerously low. I am now stabilized through infusions of IV/IG (2 every 3 weeks) and weekly physical therapy. This has slowed the deterioration of the disease. My advice is do not go on Metanx unless prescribed by your neurologist. It is not something to be taken lightly and the prescriber really needs to understand your medical condition as Metanx can make your situation worse.
I have been taking metanx since 2010. My PN symptoms have been manageable most of this time but has recently weakened my lower legs. I am not sure if metanx is working or not. My neurologist has told me not stop that it might worsen symptoms if I do. It is not cheap but worth trying in my opinion. I have not had any side effects. I am 77 years old and hoping to hang in there a little bit longer. Exercise like walking helps if you can do it. Regards