Post covid neuropathy/bfs?

The symptoms you describe sound very familiar! I’ve ended up with neuropathy after my first dose of Pfizer vaccine in May of 2021 (I’ve had covid since then too). It was finally diagnosed as length dependent axonal sensory neuropathy a by nerve conductivity testing (after I had to insist!) in Dec ‘22. Studies I have read about post-Covid and post-vax neuropathy and paresthesia (those horrible sensations in your legs) can be an autoimmune response - and very hard to test. They are being treated with some success with steroids or IV immunoglobulins. I’ve struggled to find anything that helps with the ‘fizzing’ legs and burning feet (particularly at night) as I don’t tolerate most medications. I’m currently trying CBD (2 months in) and I’m now adding PEA to see if that helps. Some nights are OK, others are a nightmare. I’ve been given a prescription for prednisone, but the potential side-effects scare me a little, and want to give the CBD a good trial to see if that helps, as I have no side-effects from it. The PEA, in combination, is supposed to help with nerve pain too. I also use compression socks at night, the minute I notice my feet getting hot. When all else fails, I take a few Advil, and that helps - which also makes me think it is an inflammatory response. I hope there is something there that will help.

I can relate 100% ... About 6 years ago I started having PVCs started seeing a cardiologist, which said no AFIB but just having a misfire of irregular heartbeats sometimes worst than others.. fast forward to last May I woke up to 3 brain shocks then started having left arm and face numbness and pins needles throughout my entire body.. all the blood tests showed nothing. This is crazy and frustrating !!

Covid in my GI tract only 2 years ago. I developed gastroparesis & then started having leg & lower back pain. MRI scheduled Tues. Neurologist said he’s having numerous patients with similar complaints & finding spinal cord damage/neuropathy due to excessive inflammation from Covid. Anyone else discovering this?

I developed similar after covid vaccination. My neurologist said the vaccine over activated my central nervous system. No medications helped. 2 years later .. stumbled across low dose naltrexone. Total game changer. 🙏🏻 do some research on this. I only take .5 mg at 9am and again at 9pm. Symptoms almost gone.

Still on the low dose naltrexone meds. 1 mg in the morning, and 1 mg at bedtime. No symptoms anymore!! 👍🏻 it’s been amazing!!

I have has severe muscle fasciculations all over my body for the last 5 months now. I often describe it like a Christmas tree with lights constantly flashing everywhere. There is no pain, just continuously annoying muscle twitching from my calves, upper legs, ribs, chest, stomach, arms, hands and face. It tends to be less noticeable when I am busy, but I still notice it even if I am doing things like playing golf. I also get hand tremors that are accentuated if I do moderate physical activities, like washing the car and get fatigued doing minor physical exertion. Thankfully my neurologist is leaning towards BFS, after ruling out the MS, Tumors, ALS, Parkinsons as all tests have been normal to date.
But it has left me wondering about any connection to the Pfizer vaccine booster that I had in April. I have also read about a lady that suffering from Aura Headaches (kaleidoscope vision), which I have had a few since having my first Pfizer jab in 2021 and definitely having an experienced one since April. My neurologist is sending me off for more bloods and referral to another neuro specialist.

My Neurologist would not prescribe this. It is not FDA approved for this, and she did not even know what it was. I found a integrative doctor, actually, Dermatologist, who was willing to prescribe. You’ll need to find a compounding pharmacist, I use Mail order with Carefirst specialty pharmacy.