← Return to Chromophobe Renal Cell Carcinoma

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Chromophobe Renal Cell Carcinoma

Kidney Cancer | Last Active: Feb 19, 2024 | Replies (5)

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@cindysummit

Thank you very much for thinking of me and for checking in.

The other night I attended a live webinar with Dr. Martin Voss from Sloan Kettering in New York. He spends all of his days with kidney patients and has a serious interest in Chromophobe Renal Cell Carcinoma. He recently received a $50,000 Grant from the Kidney Cancer Cure organization (KCCure). He presented some research findings on CHrcc and it was hopeful at best.

My next medical appointments are May 6th and May 8th. I will have both blood work and a body scan done. Honestly, as I get closer to the dates, I do feel myself getting a little anxious. I'm pretty busy as a kindergarten teacher, though, and the kids are so active, fun and upbeat! That does help a lot!

I am also trying to remember the optimism that both my oncologist and urologist displayed while reminding me that it was a small tumor.

I will keep you posted. Thank you again for your kindness and support.

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Replies to "Thank you very much for thinking of me and for checking in. The other night I..."

There is a Dr Henske in Boston that studies Chromophobe as well. 🤷‍♀️ it’s a slow growing cancer for sure is what I was told. They removed my kidney for stage one but in the collecting system.
I worry about return which is most likely normal. I have not heard of any percentage of return.
I heard a speech that Dr Henske had given and there are double amts of glutathione in Chromophobe cells🤷‍♀️🤷‍♀️