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Essential Thrombocythemia, anemia and Celiac Disease, the Trifecta
Blood Cancers & Disorders | Last Active: Mar 25, 2023 | Replies (6)Comment receiving replies
I have seen two hematologists, both very good with evaluating and treating the ET, but have little to say about the role celiac may play into this. I’m seeing a nutritionist in two weeks to come at it from that angle. I have switched to a gluten free diet and that has made me feel better. I also have the jak2 mutation, but otherwise I’m asymptomatic.
Replies to "I have seen two hematologists, both very good with evaluating and treating the ET, but have..."
Glad to hear you have changed your diet and it made you feel better.My villi is probably dulled from 3 years of fighting celiac by simple deduction of what I could or could not digest. This is a great discussion board.
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If you still have villi degradation, you are ingesting gluten still. That will cause malabsorbtion. I would suggest you go to celiac.org to help you figure out what it is you are eating that is keeping your gut irritated. Could be something as simple as ketchup or pickles or meds or supplements you are taking...a lot use gluten as a filler. I have celiac and have a gluten free household. I rarely eat food that someone else has cooked (had a friend once give me breakfast sausages that contained maltodextrin, she didn't realize it can contain gluten) I was sick for a week. Ooops. She is still my friend! 😉