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Blood Cancers & Disorders | Last Active: Nov 25, 2023 | Replies (117)
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I was also diagnosed with Mast Cell also and I did bone marro test and every test under the son always came back negative I was so FN tired of it all did antihistamine diets I was even in Duluth news tribune about it but finally I went to Mayo and I was told it was Central Sensitization "Google it" but partly bad Fibro and I had those scabs but the reason all tests came back negative for Mast Cell because it wasn't and I'm only speaking for myself but if you can ask who ever you are seeing ask them could there be a chance it could be CS, so I live in Duluth as well if you are able and need to talk let me know.
Replies to "I was also diagnosed with Mast Cell also and I did bone marro test and every..."
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@danmlee, you'll notice that we removed your phone number and address. Connect is a public forum. We recommend sharing personal contact information using the secure private message function.
I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support.