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NJH Patients

MAC & Bronchiectasis | Last Active: Jul 11, 2025 | Replies (115)

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Profile picture for Cathln @Cathln

i had a CT scan and was told I had an enlarged heart. I then had an Echo Cardiagram and showed normal sized heart, both venticals normal, but a small leak in Pulmonary valve. Also measures your Pulmonry artery pressure, it was higher than normal, but mildly so. Second one, 3 yrs later, said moderate!
I went to NJH because I didn't like that it was not being checked each year. Also have MAC, and Bronchiestasis. I had an Echo Cardiagram while in Denver, but I went to Rose Medical. They specialize in Cardiac problems. I needed to go there straight from airport for another problem, so they did it there. My numbers, although lower than the one I had at home, still indicate mild PH, not moderate
The gold standard, they say, is to have a Cardiac Cath.. But the Cardiologist, and Pulmonologist in Denver thought mild, with no heart involement, was very good. I trust them much more than my old Pulmonologist that asked me; "who told you that you had Pulmonary Hypertention!" Thats when I made appoiuntment with NJH. I trust NJH. They helped me before, when doctors here didn't. Once a patient there, always a patient.
I know they do Echos at NJH, but I was just in Rose Medical so they called NJH and did some of my testing there.
I have no symptoms, and my right side of heart is normal. I hope I have helped you some.

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Thank you. Looking forward to finally finding out whats going on.
Miriam

Thank you for your reply, very helpful!

Hello, I was just told based on an echocardiogram that my pulmonary artery pressure has increased to moderate from mild in 2023. I was very interested in what you had to say about your experience. I go to NJH in NYC at Mount Sinai for MAC and bronchietasis but also have a local pulmonologist. I was told to have a VQ scan of my lungs. I was wondering if you ever had one