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MAC & Bronchiectasis | Last Active: Nov 24, 2023 | Replies (108)

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@busybeans

Medicare paid their portion and my secondary picked up the rest. Aside from my first visit in 2011 for which I paid $2000 up front, I've never paid for anything except the very expensive genetic testing (which was optional but I didn't understand that at the time. The testing did, however, show my Alpha-1 Antitrypsin deficiency which is a protein produced in the liver that protects the lungs. My numbers aren't low enough to need infusions, but I know folks who do have to do that route. Without AAT, one is likely to have bronchiectasis or some form of COPD.) Sorry! This is far more than you asked about. Good luck with your visit. I've been going twice a year and have never had anything but exceptional care.

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Replies to "Medicare paid their portion and my secondary picked up the rest. Aside from my first visit..."

Thank you so much. I hope they figure it out. Been on 3 meds for 1 yr 3 mo and lungs still are showing infection with nodules showing up. Meds are beginning to make me feel sick. Especially rifampin. Looking forward to hearing what they say.
Miriam