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Hypereosinophilic syndrome (HES)

Blood Cancers & Disorders | Last Active: May 14 4:41am | Replies (59)
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@vgkfan

Thank you for the reply! I have had some issues with my feet swelling but its been minor. I wish I could act quickly I am stuck with no one willing to treat me. Hoping this internal medicine doctor can diagnose me. I am taking prednisone now but it barely helps. Does the Nucala help you? Did you have to wait 10 months because of insurance?

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Replies to "Thank you for the reply! I have had some issues with my feet swelling but its..."
kskhes | @kskhes | Mar 24, 2023

Once Hematologist diagnosed with Lymphatic HES using blood tests and bone marrow biopsy results he put me on monthly Nucala injection since Dec 2022 after insurance approval. Its very costly (25,000$ for 300mg per month dose) covered by insurance. It works for me and keeping Eosinophils at 0, now I stopped taking Prednisone. I m replacing Nucala with Pegasys(Interferon alpha 2a) now as in India Nucala is not available and I am moving out of USA in May 2023.

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