Opting out of radiation or chemo

Posted by brighterdays @brighterdays, Mar 21, 2023

Has anyone ever had a lumpectomy but opted out of radiation therapy or chemotherapy? Does anyone have statistics on the recurrence rate if one chooses not to do one or both?

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@tapgirl

Comfort Slings are soft tubular cushions on adjustable straps that are sold as single slings to fit under a single breast or as double slings to encompass both breasts at once. I began using the single sling the minute I started my radiation treatment. It protected the area beneath my breast from accumulating perspiration and prevented the abrasion of skin rubbing against skin. By the conclusion of my treatments, the area had darkened slightly but there was no irritation, no broken skin. The sling undoubtedly minimized the side effects of radiation. After my radiotherapy was completed I switched to wearing the double sling – especially during the summer as a simple and effective means to keep me irritation-free. I haven’t had a need for prescriptive topical medications since Look it up:ComfortSlings.com.

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Thank you for sharing this

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@mandy75

Thank you for responding! I’m trying to gather as much info before surgery and after. Where do you purchase them from?

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They are sold on their website: comfortslings.com and on Amazon.com. I send you the best good wishes for your surgery. I hope it goes smoothly and that you will be well on your way to recovery quickly.

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@mglinkhart

Thank you for sharing this

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You are welcome, of course. We are all in this together - the more information we have, the better.

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I was diagnosed in 2003 at the age of 56 with DCIS in my right breast. I was advised to have a lumpectomy followed by radiation - standard procedure then. I requested a wide excision for the lumpectomy with no radiation followup. I had done a bunch of research into various studies that showed while recurrence was reduced with radiation, the difference in lifelong mortality rate was insignificant. I didn't like what I was reading about long-term effects of radiation. Having surgery with a wide excision area (well beyond margins) was expected to reduce the chance of recurrence. Nine years later, I was diagnosed with DCIS in a different part of the same breast. Because of the time lapse and placement of the new occurrence it was not determined to be a recurrence. I opted for the same procedure as before - wide excision lumpectomy, no radiation. Four years later the DCIS was back in the same breast and also in the left breast, with a bit of stage one (invasive) in the right as well. Chemo for 6 months and 5-10 years of estrogen therapy was recommended (the standard) - whether I chose lumpectomies or a bilateral mastectomy. I opted for a mastectomy (I was 69 by then) without further treatment. My breast cancer intake doctor thought a mastectomy was a drastic solution to a low level cancer, but I thought the treatments felt more drastic. My team of 5 oncologists agreed that if I had a bilateral mastectomy without the followup treatments, my chance for recurrence was not significantly greater than with the treatments, though a recurrence would likely mean a metastasis to other organs, and thus life-threatening. Once again I opted for what I considered to be quality of life. I chose a bilateral mastectomy instead of possible problems down the road from the harsh chemicals. I also chose not to go through the turmoil of reconstructive surgery. So I'm back to the flat chest of my youth with some scarring. It's been six years since my mastectomy. So far so good, though I'm not saying my decision was right for everyone. Every woman has to make her own decisions about her life and health. It's scary and it's tricky. Fear and pressure can be a lot to handle. Life is a risk!

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Hi. I was told by my radiation oncologist (on 12/23/2022) that the chance of recurrence was 30% over a 10-year period without radiation and a 2% chance of recurrence over a 20-year period with radiation. Hope that helps.

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I wanted to avoid rad, but was told radiation for my IDC tumor would give me 95% protection from recurrence, but 2.5 yrs later I did get another tumor in lumpectomy scar area. My radiologist said maybe would have come back faster if no radiation, of course no way of knowing....

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@cashemire

I wanted to avoid rad, but was told radiation for my IDC tumor would give me 95% protection from recurrence, but 2.5 yrs later I did get another tumor in lumpectomy scar area. My radiologist said maybe would have come back faster if no radiation, of course no way of knowing....

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So sorry to hear that you have had a recurrence! We have no guarantees with BC! What is the treatment for you now? I hope you can quickly remove the tumor and get back to maintenance. 🌸

We’re you hormone positive and, if so, did you you take Aromatase inhibitors?

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@babsellen

I was diagnosed in 2003 at the age of 56 with DCIS in my right breast. I was advised to have a lumpectomy followed by radiation - standard procedure then. I requested a wide excision for the lumpectomy with no radiation followup. I had done a bunch of research into various studies that showed while recurrence was reduced with radiation, the difference in lifelong mortality rate was insignificant. I didn't like what I was reading about long-term effects of radiation. Having surgery with a wide excision area (well beyond margins) was expected to reduce the chance of recurrence. Nine years later, I was diagnosed with DCIS in a different part of the same breast. Because of the time lapse and placement of the new occurrence it was not determined to be a recurrence. I opted for the same procedure as before - wide excision lumpectomy, no radiation. Four years later the DCIS was back in the same breast and also in the left breast, with a bit of stage one (invasive) in the right as well. Chemo for 6 months and 5-10 years of estrogen therapy was recommended (the standard) - whether I chose lumpectomies or a bilateral mastectomy. I opted for a mastectomy (I was 69 by then) without further treatment. My breast cancer intake doctor thought a mastectomy was a drastic solution to a low level cancer, but I thought the treatments felt more drastic. My team of 5 oncologists agreed that if I had a bilateral mastectomy without the followup treatments, my chance for recurrence was not significantly greater than with the treatments, though a recurrence would likely mean a metastasis to other organs, and thus life-threatening. Once again I opted for what I considered to be quality of life. I chose a bilateral mastectomy instead of possible problems down the road from the harsh chemicals. I also chose not to go through the turmoil of reconstructive surgery. So I'm back to the flat chest of my youth with some scarring. It's been six years since my mastectomy. So far so good, though I'm not saying my decision was right for everyone. Every woman has to make her own decisions about her life and health. It's scary and it's tricky. Fear and pressure can be a lot to handle. Life is a risk!

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sorry for all you have been through. You are right though. We make the best choices we can in our indivivual circumstances. Life gives us no quarentees. We all give it our best shot and pray that the Lord will guide our choices. So I shall have a grand day and be thankful that I am still kicking at 77.

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@jeanr3

sorry for all you have been through. You are right though. We make the best choices we can in our indivivual circumstances. Life gives us no quarentees. We all give it our best shot and pray that the Lord will guide our choices. So I shall have a grand day and be thankful that I am still kicking at 77.

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Amen

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