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Non Hodgkin's Lymphoma- Watch & Wait Approach
Blood Cancers & Disorders | Last Active: 10 hours ago | Replies (238)Comment receiving replies
My platelets started to drop end 2019. After lab work in 2021, doctor was concerned and January 2022, I had a bone marrow biopsy and aspiration and CT scan which confirmed I had non Hodgkins low grade B cell Lymphoma/Leukemia. I have blood work done every 6 months but my oncologist did not want to put me through a yearly CT scan as I am still feeling OK in myself. I winter in Florida and go back to Minnesota where I see another oncologist who may want me to have that CT scan. I don’t like the radiation a CT scan gives off either but understand why they need to get done. I am on a watch and wait. Keep in touch please.
Replies to "My platelets started to drop end 2019. After lab work in 2021, doctor was concerned and..."
@elainejarrett. Hello Elaine.. Even though your post I am responding to was Mar/2023, I was wondering if I could ask you details about your bone marrow biopsy… So being diagnosed that you have lymphoma in your bones, you were put on the “Watch & Wait” protocol ?? I was diagnosed with Follicular this last May/2024 (very new to this)… I’m low grade 1-2, but Stage 3, with numerous affected nodes throughout my body. My bloodwork just recently came back with some low counts. I will be retested in October, and if still low, my doctor said he will want a bone biopsy.. So, I guess I’m wondering about that, thinking that would be more serious, or not ?? How are you doing now? With it being over a year ago since this post of yours, are you still on “Watch & Wait”…. Hope you see this and will respond to me. Thank you, take care….
Kathy
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My father died in 1990 from NHL, fortunately the science/treatment is so much better now. Hope you have many years.