Connect
← Return to Hypereosinophilic syndrome (HES)
Discussion
Hypereosinophilic syndrome (HES)
Blood Cancers & Disorders | Last Active: May 14 4:41am | Replies (59)Comment receiving replies
An internal medicine is a doctor who only treats adults. It is worth a try. However, have you seen a dermatologist since you have this rash?
Can you appeal to your insurance to see a hematologist out of network?
Best wishes, Eileen
Replies to "An internal medicine is a doctor who only treats adults. It is worth a try. However,..."
Hi thanks for replying. I saw a dermatologist for the last 3 years and Im pretty sure that guy would of let me die. He told me it was eczema for 2 years until it got so severe that prednisone barely helped anymore. He wanted to put me on Dupixent for eczema. Thats when I went to an allergist and he told me I likely have HES. The allergist says he will treat me but I have to be diagnosed by first. Going to check with my insurance, thats a good idea. Hopefully someone will see me
Connect
Act quickly. I have HES since May 2021. Started with a rash on arms and ankles, swollen ankles and ended up with severe blood clots in my right foot arteries where due to delay in diagnosis I had leg bypass surgery on Dec 2021. I would recommend to be on blood thinners right away if you see issues like pain and tingling sensation on legs. Your symptoms could be different. I live in Bay Area any my Hematologist diagnosed Lymphotic HES based on bone marrow biopsy. I was on steroids last 10 months and now trying Nucala and interferon alpha 2a injections.