Hello @joejan, welcome to Connect. I can understand why you would have questions about whether or not the hemochromatosis or dementia is what is causing memory issues or if your husband has dementia at all. If you don't mind sharing, have your providers collaborated on each diagnosis to determine which may be causing the memory issues. Did the provider who diagnosed hemochromatosis mention that it might be the primary cause of the memory issues? You may notice, I moved your discussion to the Digestive Health group as hemochromatosis is typically treated by the Gastroenterology and Hepatology division. I would also like to invite back a few members who previously discussed hemochromatosis, @savov, @ruettj.

Thank you for your response, Justin. My husband is currently under the care of a hematologist and a neurologist - wondering whether he should instead be seeing a gastroenterologist? I welcome input from others who may have some guidance to offer. Thank you all.

What are your husbands iron levels? How long has he had iron overload? Has he been genetic tested? I'm under care of hematologist/oncologist specialist. He ordered therapeutic phlebotomy. I joined a group on the internet that recommended lifestyle changes to avoid phlebotomy so often. Im down to every 6 months. My memory is sound now --no brain fog.

The usual treatment for iron overload is to give blood at local blood bank every other month until the iron saturation level get to below 50% and ferritin gets back to within normal limits. I have been a blood donor for 65 years, not knowing that I had iron overload. Would have been dead long ago if by chance I hadn't been a donor. Get a simple iron panel blood test