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Liver transplant - Let's support each other
Transplants | Last Active: Jun 22 9:17am | Replies (1606)Comment receiving replies
My concerns at this moment is his coping skills. He very quite and keeps things inside. He sees a counselor once a week but I think it's just a formality for transplant. He's showing signs of wrekless behavior. We have been threw so much. I feel like he has given up or is acting out cause he's scared. I find myself being angry and mad because it's not acceptable at this point. His actions are hurting other and he doesn't understand why.
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@sssklynn
My first thought is educate yourself and loved ones about liver transplant. Depend on reliable Facts, only. Mayo Clinic provides an excellent patient education. I am going to share the link below and I urge you to read/reread all of it because it will give you a glimpse of what your son is trying cope with, even if he is not verbalizing it.
- Liver transplant
https://www.mayoclinic.org/tests-procedures/liver-transplant/about/pac-20384842
sssklynn
I was 60 when I received my transplant, and I was able to share everything with my husband /caregiver. We attended all appointments together, and he was my extra set of ears. We cried often, and together. Sometimes we sat in silence. As a married couple, this was easy for us to do. But there was one thing missing for me - knowing someone else who understood what "I" was going thru because they had a similar experience of "What if...?" And that person was an acquaintance from church who was a cancer patient. She became a best friend as we were able to openly talk about topics like fear, dying, uncertainty, spiritual, procedures from a first person experience.
How old is your son? Is there anyone in your son's life who is going through a complex medical diagnosis for him to journey with? Is his therapist familiar or experienced with the trauma of what your son is experiencing?